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Visual Imagery: A Tool to Explore the Impact of Burning Mouth Syndrome

Zakrzewska, JM; Padfield, D; Ferguson, A; (2019) Visual Imagery: A Tool to Explore the Impact of Burning Mouth Syndrome. Journal of Oral & Facial Pain and Headache , 33 (1) e8-e14. 10.11607/ofph.2095. Green open access

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Abstract

Aim: How photographic images (‘Pain Cards’) co-created by an artist and chronic pain patients could be used with groups of patients with burning mouth syndrome to facilitate characterisation of their pain and its impact on quality of life. // Method: Ten groups of patients with burning mouth syndrome attending a two and a half hour information session in a facial pain unit were presented with 54 Pain Cards put in random order on a table. They were asked to pick one card which described the quality of their pain and one which reflected the impact of the pain on their lives. The total number of patients was 119 (divided into groups of 8-14) over a four-year period. // Results: 114 patients chose a Pain Card, 73 were used to phenotype the pain whereas 127 were used to describe the impact of the pain. The most frequently used Pain Card (13 times) was a pair of lips closed with a clothes peg, whereas most other frequently selected images were black and white. The choice of Pain Card and words used to explain their choice implied a neuropathic type of pain. Themes that are common are those of isolation, loss of confidence, low mood, decrease in activities and socialisation. // Conclusion: The Pain Cards chosen and the main themes support those found in the literature on BMS. The Pain Cards may help pain sufferers gain more empathy and support due to improved understanding by their health care providers.

Type: Article
Title: Visual Imagery: A Tool to Explore the Impact of Burning Mouth Syndrome
Open access status: An open access version is available from UCL Discovery
DOI: 10.11607/ofph.2095
Publisher version: https://doi.org/10.1021/10.11607/ofph.2095
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: burning mouth syndrome, images, communication, pain
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities > The Slade School of Fine Art
URI: https://discovery.ucl.ac.uk/id/eprint/10077169
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