Mes, MA;
Chan, AHY;
Wileman, V;
Katzer, CB;
Goodbourn, M;
Towndrow, S;
Taylor, SJC;
(2019)
Patient involvement in questionnaire design: Tackling response error and burden.
Journal of Pharmaceutical Policy and Practice
, 12
(1)
, Article 17. 10.1186/s40545-019-0175-0.
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Abstract
Questionnaires capture patient perspectives succinctly and at relatively low cost, making them a popular data collection tool for health researchers. However, questionnaire data can be affected by response error and response burden. Patient involvement during questionnaire design can help reduce the effect of response error and burden. This paper describes a novel approach for patient involvement during questionnaire design, combining methods from cognitive interviewing (Think Aloud Tasks) with an open-ended follow-up discussion to collate and act on patient feedback, while also taking account of the common challenges in questionnaire design (i.e. response error and burden). The strengths and limitations of this approach are discussed, and recommendations are made for future use.
| Type: | Article |
|---|---|
| Title: | Patient involvement in questionnaire design: Tackling response error and burden |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1186/s40545-019-0175-0 |
| Publisher version: | https://doi.org/10.1186/s40545-019-0175-0 |
| Language: | English |
| Additional information: | © The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/). |
| Keywords: | Patient and public involvement (PPI), Think Aloud Tasks (TATs), Cognitive Interviewing, Questionnaire Design |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Life Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Life Sciences > UCL School of Pharmacy UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Life Sciences > UCL School of Pharmacy > Practice and Policy |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10076704 |
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