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Preventing child deaths: what do administrative data tell us?

Zylbersztejn, A; Gilbert, R; Hardelid, P; (2020) Preventing child deaths: what do administrative data tell us? Archives of Disease in Childhood , 105 (1) pp. 15-17. 10.1136/archdischild-2019-317135. Green open access

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Abstract

The UK has one of the highest child mortality rates in Western Europe: 4 in every 1000 children die before the age of 1 year, compared with 2 per 1000 children in Sweden. Likewise, the mortality rate of children aged 1–14 years in the UK is 10.4/100 000 children compared with 8.3/100 000 in Sweden.1 Since the UK has a universal healthcare system, and comparable levels of per capita incometo Sweden, a substantial proportion of deaths in children in the UK are likely to be preventable. This raises the question of what policies we should prioritise in order to lower child mortality rates in the UK most rapidly. Data on child deaths are crucial to answering this question. In the November 2018 issue of Archives, Garstang,2 in an editorial linked to a paper by Firth et al,3 argues that a national dataset collated from Child Death Overview Panels (CDOPs) will allow us to ‘understand better why children die in the UK and reduce our child mortality’. In this commentary, we compare data collected by CDOPs to mortality data collected via linked civil registration and administrative data systems. We propose that important lessons for preventing child deaths can already be drawn from analyses of mortality records linked to other administrative datasets and at relatively low cost. Targeted use of detailed investigations into the circumstances of child death could be guided by and enhance findings from administrative data, but the priority should be greater use and wider linkage of these data to inform strategies to prevent child deaths.

Type: Article
Title: Preventing child deaths: what do administrative data tell us?
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/archdischild-2019-317135
Publisher version: http://dx.doi.org/10.1136/archdischild-2019-317135
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Epidemiology, forensic medicine, paediatric practice
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/10075363
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