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A systematic review of fidelity measurements in complex interventions for people with intellectual disabilities and behaviours that challenge

Hassiotis, A; Paulauskaite, L; (2019) A systematic review of fidelity measurements in complex interventions for people with intellectual disabilities and behaviours that challenge. Advances in Mental Health and Intellectual Disabilities , 13 (3/4) pp. 158-172. 10.1108/AMHID-09-2018-0040. Green open access

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Abstract

Purpose Fidelity data in clinical trials are not only necessary for appraising the internal and external validity, but also could provide useful insights how to improve the application of an intervention in everyday settings. The purpose of this paper is to understand the current literature of fidelity measurements in complex interventions for people with intellectual disabilities (ID) and behaviours that challenge. Design/methodology/approach The electronic databases MEDLINE, Embase, PsycINFO, Web of Science and CINAHL Plus were searched for studies published between 1990 to 2017 that have mentioned fidelity in randomised controlled trials of complex interventions for people with ID and behaviours that challenge based on positive behaviour support or applied behaviour analysis principles. The authors also searched the grey literature and reference lists. Findings Five randomised controlled trials were included in the review. The authors found variable and inconsistent fidelity measurements reported in the studies. The most frequently provided fidelity elements found in four out of five studies were adherence of implementation, dose and some aspects of quality of delivery. Research limitations/implications Research recommendations for a standardised approach of measuring fidelity in such studies are suggested. Originality/value The first review of such type that confirms the paucity of research measuring fidelity in complex interventions in this population.

Type: Article
Title: A systematic review of fidelity measurements in complex interventions for people with intellectual disabilities and behaviours that challenge
Open access status: An open access version is available from UCL Discovery
DOI: 10.1108/AMHID-09-2018-0040
Publisher version: https://doi.org/10.1108/AMHID-09-2018-0040
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Fidelity, Intellectual disability, Randomised controlled trail, Complex intervention, Behaviours that challenge, Positive behaviour support
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10075105
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