Fenn, K;
Scior, K;
(2019)
The psychological and social impact of self-advocacy group membership on people with intellectual disabilities: A literature review.
Journal of Applied Research in Intellectual Disabilities
, 32
(6)
pp. 1349-1358.
10.1111/jar.12638.
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Abstract
Background: There is no one agreed definition of self-advocacy, but it can be taken to include actions and concepts such as standing up for one’s rights and self-determination. / Method: A review of studies examining the psychological and social impact of self-advocacy group membership on people with intellectual disabilities was conducted. Systematic searches of electronic databases (PsycINFO, Scopus, Web of Science and ProQuest’s Sociology Database), together with manual searches of reference lists and citations, identified 12 studies all of which used a qualitative methodology. / Results: The most frequently reported outcomes were ‘empowerment’ and the associated outcome of ‘increased confidence’. ‘Belonging’ and increased opportunities for social connections were also key themes in the literature. A final key outcome was changed self-identity, which appeared to be associated with changes to activities and occupations. / Conclusions: Limitations of the review included difficulty categorising outcomes. Limitations of the evidence base included a lack of quantitative studies making it difficult to assess outcomes. Implications of the review include an observation that the literature has focused on self-advocates lived experiences via qualitative interviews; this role in research could be extended to co-construction of research agendas with self-advocates.
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