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Collaborative and consultative patient and public involvement in sexual health research: Lessons learned from four case studies

McDonagh, L; Blomquist, P; Wayal, S; Cochrane, S; Calliste, J; Cassell, J; Edelman, N; Collaborative and consultative patient and public involvement in sexual health research: Lessons learned from four case studies. Sexually Transmitted Infections 10.1136/sextrans-2018-053922. (In press). Green open access

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Abstract

Objectives: Patient and Public Involvement (PPI) is increasingly mandated in health research. However, there is little guidance on conducting PPI for research on episodic infections, risk factors, hard-to-reach populations, or stigmatised behaviours. The aim of this paper is to address the gap in PPI guidance by illustrating different approaches to challenging PPI scenarios. Methods: Four case studies of sexual health research PPI, each of which discusses three stages of PPI (defining, accessing and engaging with lay advisors). Results: Researchers may need to use broadly define lay advisors; involving those with insight into population of interest can be beneficial. Alternative and multiple routes to access patients/public should be considered. Flexible means of engagement can enable lay advisors to contribute anonymously, remotely and/or opportunistically. Conclusions: Case studies may help researchers in sexual health (and other fields) to better meet the challenges of PPI for studies which concern hard-to-reach populations, episodic infections, risk factors, and stigmatised behaviours.

Type: Article
Title: Collaborative and consultative patient and public involvement in sexual health research: Lessons learned from four case studies
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/sextrans-2018-053922
Publisher version: https://doi.org/10.1136/sextrans-2018-053922
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: patient and public involvement, hard-to-reach populations, episodic infection, stigmatised behaviours
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/10071160
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