Pinfold, V;
Dare, C;
Hamilton, S;
Kaur, H;
Lambley, R;
Nicholls, V;
Petersen, I;
... Stevenson, F; + view all
(2019)
Anti-psychotic medication decision making during pregnancy: a co-produced research study.
Mental Health Review Journal
, 24
(2)
pp. 69-84.
10.1108/MHRJ-04-2017-0018.
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Abstract
PURPOSE: To understand how women with a diagnosis of schizophrenia or bipolar disorder approach medication decision making in pregnancy. DESIGN: The study was co produced by university academics and charity based researchers. Semistructured interviews were conducted by three peer researchers who have used antipsychotic medication and were of child bearing age. Participants were women with children under 5, who had taken antipsychotic medication in the 12 months before pregnancy. Twelve women were recruited through social media and snowball techniques. Data were analysed following a three stage process. FINDINGS: The accounts highlighted decisional uncertainty, with medication decisions situated among multiple sources of influence from self and others. Women retained strong feelings of personal ownership for their decisions, whilst also seeking out clinical opinion and accepting they had constrained choices. Two styles of decision making emerged: shared and independent. Shared decision making involved open discussion, active permission seeking, negotiation, and coercion. Independent women-led decision making was not always congruent with medical opinion, increasing pressure on women and impacting pregnancy experiences. A common sense self-regulation model explaining management of health threats resonated with women’s accounts. PRACTICAL IMPLICATIONS: Women should be helped to manage decisional conflict and the emotional impact of decision making including long term feelings of guilt. Women experienced interactions with clinicians as lacking opportunities for enhanced support except in specialist perinatal services. This is an area that should be considered in staff training, supervision, appraisal and organization review. ORIGINALITY: This paper uses data collected in a co-produced research study including peer researchers.
Type: | Article |
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Title: | Anti-psychotic medication decision making during pregnancy: a co-produced research study |
Open access status: | An open access version is available from UCL Discovery |
DOI: | 10.1108/MHRJ-04-2017-0018 |
Publisher version: | https://doi.org/10.1108/MHRJ-04-2017-0018 |
Language: | English |
Additional information: | Copyright © 2019, Vanessa Pinfold, Ceri Dare, Sarah Hamilton, Harminder Kaur, Ruth Lambley, Vicky Nicholls, Irene Petersen, Paulina Szymczynska, Charlotte Walker and Fiona Stevenson. Published by Emerald Publishing Limited. This article is published under the Creative Commons Attribution (CC BY 4.0) licence. Anyone may reproduce, distribute, translate and create derivative works of this article (for both commercial & non-commercial purposes), subject to full attribution to the original publication and authors. The full terms of this licence may be seen at http://creativecommons.org/licences/by/4.0/legalcode |
UCL classification: | UCL UCL > Provost and Vice Provost Offices UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health |
URI: | https://discovery.ucl.ac.uk/id/eprint/10068214 |
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