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In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Hepgul, N; Sleeman, KE; Firth, AM; Johnston, A; Teo, JTH; Bernal, W; Dobson, RJB; (2019) In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'. Journal of Medical Ethics , 45 (5) pp. 351-352. 10.1136/medethics-2018-105271. Green open access

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Abstract

We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Type: Article
Title: In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/medethics-2018-105271
Publisher version: https://doi.org/10.1136/medethics-2018-105271
Language: English
Additional information: This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http:// creativecommons.org/licenses/by-nc/4.0/
Keywords: Confidentiality/privacy, information technology, informed consent, patient perspective, research ethics
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics > Clinical Epidemiology
URI: https://discovery.ucl.ac.uk/id/eprint/10067118
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