Hepgul, N;
Sleeman, KE;
Firth, AM;
Johnston, A;
Teo, JTH;
Bernal, W;
Dobson, RJB;
(2019)
In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'.
Journal of Medical Ethics
, 45
(5)
pp. 351-352.
10.1136/medethics-2018-105271.
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Abstract
We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.
Type: | Article |
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Title: | In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research' |
Location: | England |
Open access status: | An open access version is available from UCL Discovery |
DOI: | 10.1136/medethics-2018-105271 |
Publisher version: | https://doi.org/10.1136/medethics-2018-105271 |
Language: | English |
Additional information: | This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http:// creativecommons.org/licenses/by-nc/4.0/ |
Keywords: | Confidentiality/privacy, information technology, informed consent, patient perspective, research ethics |
UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics > Clinical Epidemiology |
URI: | https://discovery.ucl.ac.uk/id/eprint/10067118 |
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