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Qualitative study to identify issues affecting quality of life in adults with craniofacial anomalies

Visram, SM; Gill, D; Shute, JT; Cunningham, SJ; (2019) Qualitative study to identify issues affecting quality of life in adults with craniofacial anomalies. British Journal of Oral and Maxillofacial Surgery , 57 (1) pp. 47-52. 10.1016/j.bjoms.2018.06.011. Green open access

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Abstract

Our objective was to identify key issues that affect the quality of life (QoL) of adult patients with craniofacial anomalies. This was a qualitative prospective study using in-depth, semi-structured interviews. Ten patients who fulfilled the inclusion criteria were recruited during their attendance at the Adult Craniofacial Clinic at the Eastman Dental Hospital, University College London Hospitals NHS Foundation Trust. Interviews ceased when no new themes arose. A framework method of analysis was used to identify themes that related to QoL. Opinions varied and, although some were positive, the eight main themes that emerged were mainly negative. One of the main themes was that of emotional issues. Within this theme, subthemes included teasing, bullying and abuse, as well as low mood, anxiety, depression, and self-harm. Participants experienced a range of feelings as a result of their craniofacial conditions and expressed the need for further support. Healthcare professionals involved in the treatment of these patients, should be aware of these issues and give advice about how to access further support.

Type: Article
Title: Qualitative study to identify issues affecting quality of life in adults with craniofacial anomalies
Location: Scotland
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.bjoms.2018.06.011
Publisher version: https://doi.org/10.1016/j.bjoms.2018.06.011
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Craniofacial anomalies, Framework Analysis, Patient Perceptions, Psychosocial, Quality of Life
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute > EDI Craniofacial and Development Sci
URI: https://discovery.ucl.ac.uk/id/eprint/10065197
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