Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study

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Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study

Wood, D; Geoghegan, S; Ramnarayan, P; Davis, PJ; Pappachan, JV; Goodwin, S; Wray, J; (2018) Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study. European Journal of Pediatrics , 177 (5) pp. 747-752. 10.1007/s00431-018-3117-y. Green open access

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Abstract

Critically ill adolescents are usually treated on intensive care units optimised for much older adults or younger children. The way they access and experience health services may be very different to most adolescent service users, and existing quality criteria may not apply to them. The objectives of this pilot study were, firstly, to determine whether adolescents and their families were able to articulate their experiences of their critical care admission and secondly, to identify the factors that are important to them during their intensive care unit (ICU) or high dependency unit (HDU) stay. Participants were 14–17 year olds who had previously had an emergency admission to an adult or paediatric ICU/HDU in one of four UK hospitals (two adult, two paediatric) and their parents. Semi-structured interviews were conducted with eight mother-adolescent dyads and one mother. Interviews were transcribed and analysed using framework analysis. Conclusion: The main reported determinant of high-quality care was the quality of interaction with staff. The significance of these interactions and their environment depended on adolescents’ awareness of their surroundings, which was often limited in ICU and changed significantly over the course of their illness. Qualitative interview methodology would be difficult to scale up for this group.

Type:	Article
Title:	Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study
Open access status:	An open access version is available from UCL Discovery
DOI:	10.1007/s00431-018-3117-y
Publisher version:	http://doi.org/10.1007/s00431-018-3117-y
Language:	English
Additional information:	Copyright © The Author(s) 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
Keywords:	Adolescent medicine, Critical care, Critical illness, Intensive care units, Intensive care units, paediatric, Qualitative research
UCL classification:	UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Cardiovascular Science UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Infection, Immunity and Inflammation Dept
URI:	https://discovery.ucl.ac.uk/id/eprint/10060392