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Supporting minimally verbal autistic girls with intellectual disabilities through puberty: perspectives of parents and educators

Cummins, C; Pellicano, E; Crane, LM; (2019) Supporting minimally verbal autistic girls with intellectual disabilities through puberty: perspectives of parents and educators. Journal of Autism and Developmental Disorders 10.1007/s10803-018-3782-8. (In press). Green open access

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Abstract

Limited research has examined puberty in autistic girls, yet alone those who are minimally verbal and with additional intellectual disabilities. In this study, ten parents and ten educators were interviewed about their views and experiences of supporting these girls through puberty. Results demonstrated that many parents had concerns prior to the onset of puberty in these girls. Yet, for most girls, experiences of puberty were felt to be positive, with the girls coping well with changes that they were experiencing (e.g. menstruation, breast development and developing body hair). Thematic analysis of interview data highlighted three main themes: a range of individual experiences and needs; the importance of promoting dignity and respect; and identifying ways to support these girls through puberty.

Type: Article
Title: Supporting minimally verbal autistic girls with intellectual disabilities through puberty: perspectives of parents and educators
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s10803-018-3782-8
Publisher version: https://doi.org/10.1007/s10803-018-3782-8
Language: English
Additional information: © The Author(s) 2018. Open Access: This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
Keywords: Autism, Puberty, Minimally verbal, Intellectual disability, Parents, Teachers
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Science
URI: https://discovery.ucl.ac.uk/id/eprint/10057989
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