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Documentation in the neonatal unit: the support given to parents and their participation in their baby's care

Shaw, CB; Suonpera, E; Gallagher, K; Aladangady, N; Stokoe, E; Marlow, N; (2019) Documentation in the neonatal unit: the support given to parents and their participation in their baby's care. Journal of Advanced Nursing , 75 (3) pp. 628-639. 10.1111/jan.13910. Green open access

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Abstract

Aims: To explore how often the participation of parents in their infants’ care and professionals’ support for parents was documented in the clinical records and to determine how such participation and support were documented. / Background: Comprehensive documentation can facilitate collaboration between parents and health care professionals, supporting family-centered care, yet little is known about how this is reflected in practice. Design: A prospective, mixed methods approach was used to analyse the clinical records of newborns. / Methods: The study was carried out in a large tertiary Neonatal Unit in the United Kingdom, from 2013-2014. We analysed the clinical records of 24 critically ill newborns using content analysis and thematic analysis, enabling us to determine the frequency of documented support and participation as well as how these were documented. / Results: We identified four categories of support in the clinical records: emotional, spiritual, social and practical support. We also identified instances where parents were encouraged to participate in their infant’s care. Frequency differences in the documentation of support between infants facing a redirection of care decision and infants receiving active treatment were found. Two organisational themes were identified: task focused documentation and minimal documentation of parental role. These were grouped together under the global theme professional accountability. The perspectives and experiences of parents were minimally documented throughout. / Conclusion: Documentation of support towards parents and parents’ participation in their infants’ care was limited in terms of frequency and content. Encouraging regular, detailed documentation of these aspects of care may facilitate family-centered care.

Type: Article
Title: Documentation in the neonatal unit: the support given to parents and their participation in their baby's care
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/jan.13910
Publisher version: https://doi.org/10.1111/jan.13910
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Documentation, family-centered care, neonatal, support, participation, nursing, thematic analysis, content analysis, parents
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health > Infection and Population Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Maternal and Fetal Medicine
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Neonatology
URI: https://discovery.ucl.ac.uk/id/eprint/10057155
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