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Gaps in understanding the experiences of homecare workers providing care for people with dementia up to the end of life: A systematic review

D'Astous, V; Abrams, R; Vandrevala, T; Samsi, K; Manthorpe, J; (2017) Gaps in understanding the experiences of homecare workers providing care for people with dementia up to the end of life: A systematic review. Dementia 10.1177/1471301217699354. (In press). Green open access

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Abstract

This systematic review of the literature explores the perspectives and experiences of homecare workers providing care for people with dementia living at home up to the end of life. A search of major English language databases in 2016 identified 378 studies on the topic, of which 12 met the inclusion criteria. No empirical research was identified that specifically addressed the research question. However, synthesis of the findings from the broader literature revealed three overarching themes: value of job role, emotional labour and poor information and communication. The role of homecare workers supporting a person with dementia up to the end of life remains under-researched, with unmet needs for informational, technical and emotional support reported. The effective components of training and support are yet to be identified.

Type: Article
Title: Gaps in understanding the experiences of homecare workers providing care for people with dementia up to the end of life: A systematic review
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/1471301217699354
Publisher version: https://doi.org/10.1177%2F1471301217699354
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: homecare, home health aide, dementia, end of life, social care, community care
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/10056681
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