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Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever

van de Maat, JS; van Klink, D; den Hartogh-Griffioen, A; Schmidt-Cnossen, E; Rippen, H; Hoek, A; Neill, S; ... Oostenbrink, R; + view all (2018) Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever. BMJ Open , 8 (8) , Article e021697. 10.1136/bmjopen-2018-021697. Green open access

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Abstract

OBJECTIVES: First, to explore parents' views on and experiences of managing their febrile child and to assess their behaviour and needs when in search of information about fever; second, to develop and evaluate a hospital discharge information package about fever in children. DESIGN: Mixed methods: (A) qualitative study with semistructured interviews and a focus group discussion (FGD) and (B) quantitative survey. SETTING: Emergency department, non-acute hospital setting and day nursery in Rotterdam, The Netherlands. PARTICIPANTS: Parents of children <18 years (interviews, n=22) parents of children under 5 years (FGD (n=14), survey (n=38)). INTERVENTION: Information package about fever in children (leaflet and website including videos). OUTCOME MEASURES QUANTITATIVE SURVEY: Knowledge of fever and confidence in caring for a febrile child (Likert scale 0-5). RESULTS: Parents found fever mostly alarming, especially high fever. Help-seeking behaviour was based on either specific symptoms or on an undefined intuition. When parents did not feel recognised in their concern or felt criticised, anxiety increased as well as the threshold to seek healthcare for future illnesses. Information was needed, especially for situations when the general practitioner or social network were less easily available. This information should be reliable, consistent, available in multiple formats and include advice on management of fever at home and precise referral to medical services. Parents reported improved knowledge about fever (p<0.05) and mentioned improved confidence in caring for a child with fever at home after consulting the information package. CONCLUSION: Parents of children with a fever visiting the hospital are concerned about specific symptoms or based on an undefined intuition. Rather than telling parents that they should manage their child's illness at home, healthcare professionals should recognise parental intuition and provide clear information on alarming signs and potential diagnoses to empower parents in the management of their febrile child.

Type: Article
Title: Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/bmjopen-2018-021697
Publisher version: http://dx.doi.org/10.1136/bmjopen-2018-021697
Language: English
Additional information: © Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
Keywords: infectious diseases, paediatrics, qualitative research
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/10055725
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