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Reflections on the ethics of participatory visual methods to engage communities in global health research

Black, GF; Davies, A; Iskander, D; Chambers, M; (2017) Reflections on the ethics of participatory visual methods to engage communities in global health research. Global Bioethics , 29 (1) pp. 22-38. 10.1080/11287462.2017.1415722. Green open access

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Abstract

There is a growing body of literature describing conceptual frameworks for working with participatory visual methods (PVM). Through a global health lens, this paper examines some key themes within these frameworks. We reflect on our experiences of working with with an array of PVM to engage community members in Vietnam, Kenya, the Philippines and South Africa in biomedical research and public health. The participants that we have engaged in these processes live in under-resourced areas with high prevalence of communicable and non-communicable diseases. Our paper describes some of the challenges that we have encountered while using PVM to foster knowledge exchange, build relationships and facilitate change among individuals and families, community members, health workers, biomedical scientists and researchers. We consider multiple ethical situations that have arisen through our work and discuss the ways in which we have navigated and negotiated them. We offer our reflections and learning from facilitating these processes and in doing so we add novel contributions to ethical framework concepts.

Type: Article
Title: Reflections on the ethics of participatory visual methods to engage communities in global health research
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/11287462.2017.1415722
Publisher version: https://doi.org/10.1080/11287462.2017.1415722
Language: English
Additional information: This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/
Keywords: Participatory visual methods, biomedical research, community engagement, ethics, global health
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS > Dept of Anthropology
URI: https://discovery.ucl.ac.uk/id/eprint/10052269
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