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Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals

Crane, LM; Batty, R; Adeyinka, H; Goddard, L; Henry, LA; Hill, E; (2018) Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals. Journal of Autism and Developmental Disorders , 48 (11) pp. 3761-3772. 10.1007/s10803-018-3639-1. Green open access

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Abstract

Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision.

Type: Article
Title: Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s10803-018-3639-1
Publisher version: https://doi.org/10.1007/s10803-018-3639-1
Language: English
Additional information: © The Author(s) 2018. Open Access: This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
Keywords: Autism, Diagnosis, Support, Adults, Parents, Professionals
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
URI: https://discovery.ucl.ac.uk/id/eprint/10049843
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