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Young-onset dementia and the need for specialist care: a national and international perspective

Carter, JE; Oyebode, JR; Koopmans, RTCM; (2018) Young-onset dementia and the need for specialist care: a national and international perspective. Aging & Mental Health , 22 (4) pp. 468-473. 10.1080/13607863.2016.1257563. Green open access

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Abstract

OBJECTIVES: Receiving a timely and accurate diagnosis and gaining access to age-appropriate support for younger people living with dementia (YPD) remains a challenge both in the UK and internationally because the focus of most dementia services is primarily upon the needs of older people. The political case to improve services for YPD depends upon the establishment of an understanding of the clinical symptoms, an unequivocal evidence base about need and an accurate evaluation of the size of the population affected. This short report assesses the evidence base from international studies regarding service design and delivery. The goal is to raise awareness, advance best practice and galvanise the international community to address the serious underfunding and underprovision of care for this marginalised group. CONCLUSION: The current evidence suggests that there are universal problems, regardless of continent, with delays to diagnosis and poor understanding of optimum models for service provision and long-term care.

Type: Article
Title: Young-onset dementia and the need for specialist care: a national and international perspective
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/13607863.2016.1257563
Publisher version: https://doi.org/10.1080/13607863.2016.1257563
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Young Dementia Network, Young-onset dementia, care pathway, needs, neurodegeneration, service provision, younger people living with dementia
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10047114
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