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Parental experience of interaction with healthcare professionals during their infant's stay in the neonatal intensive care unit.

Gallagher, K; Shaw, C; Aladangady, N; Marlow, N; (2017) Parental experience of interaction with healthcare professionals during their infant's stay in the neonatal intensive care unit. Arch Dis Child Fetal Neonatal Ed 10.1136/archdischild-2016-312278. (In press). Green open access

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Abstract

OBJECTIVE: To explore the experiences of parents of infants admitted to the neonatal intensive care unit towards interaction with healthcare professionals during their infants critical care. DESIGN: Semi-structured interviews were conducted with parents of critically ill infants admitted to neonatal intensive care and prospectively enrolled in a study of communication in critical care decision making. Interviews were transcribed verbatim and uploaded into NVivo V.10 to manage and facilitate data analysis. Thematic analysis identified themes representing the data. RESULTS: Nineteen interviews conducted with 14 families identified 4 themes: (1) initial impact of admission affecting transition into the neonatal unit; (2) impact of consistency of care, care givers and information giving; (3) impact of communication in facilitating or hindering parental autonomy, trust, parental expectations and interactions; (4) parental perception of respect and humane touches on the neonatal unit. CONCLUSION: Factors including the context of infant admission, interprofessional consistency, humane touches of staff and the transition into the culture of the neonatal unit are important issues for parents. These issues warrant further investigation to facilitate individualised family needs, attachment between parents and their baby and the professional team.

Type: Article
Title: Parental experience of interaction with healthcare professionals during their infant's stay in the neonatal intensive care unit.
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/archdischild-2016-312278
Publisher version: http://doi.org/10.1136/archdischild-2016-312278
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Communication, engagement, interaction, neonatal intensive care, parents
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Maternal and Fetal Medicine
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Neonatology
URI: https://discovery.ucl.ac.uk/id/eprint/10045559
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