UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

Exploring the lived experience of fibromyalgia using creative data collection methods

Brown, N; (2018) Exploring the lived experience of fibromyalgia using creative data collection methods. Cogent Social Sciences , 4 (1) , Article 1447759. 10.1080/23311886.2018.1447759. Green open access

[thumbnail of NBrown - Exploring the lived experience of fibromyalgia using creative data collection methods.pdf]
Preview
Text
NBrown - Exploring the lived experience of fibromyalgia using creative data collection methods.pdf - Accepted version

Download (673kB) | Preview

Abstract

This paper reports the findings of a qualitative study into the lived experience of fibromyalgia. Fibromyalgia is a complex condition that is characterised by variability of symptoms and severity. Instead of applying a purely narrative interview approach, this research used a creative and expressive means drawing on interpretative phenomenological analysis (IPA) to make sense of the data, whilst applying an attitude of openness and responsiveness. In line with IPA, the findings reported here refer to a homogenous group of 5 participants drawn from a larger pool of participants. Participants were asked to create an identity box. They were required to respond to questions using physical and metaphorical representations and objects. The analysis and discussion highlight the link between existing theoretical conceptualisations of illness experiences and the participants’ fibromyalgia experience. The women talk about losses and gains in relation to fibromyalgia, but their overall sentiment is one of acceptance of the illness whilst continuing to fight the symptoms and trying to mitigate their impact. While liminality, biographical disruption, identity continuity and new normalcy are experienced and while elements of restitution, quest and chaos narratives can be identified, the fibromyalgia experience is more complex. It is argued that the chosen methodology through the identity boxes and the metaphorical representation allowed for this more holistic view of the fibromyalgia experience.

Type: Article
Title: Exploring the lived experience of fibromyalgia using creative data collection methods
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/23311886.2018.1447759
Publisher version: https://doi.org/10.1080/23311886.2018.1447759
Language: English
Additional information: Copyright © 2018 The Author(s). This open access article is distributed under a Creative Commons Attribution (CC-BY) 4.0 license
Keywords: Fibromyalgia, Identity box, Metaphors, Representations, Identity, Restitution, chaos and quest, Biographical disruption and liminality
UCL classification: UCL
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities > Arts and Sciences (BASc)
URI: https://discovery.ucl.ac.uk/id/eprint/10044807
Downloads since deposit
185Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item