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Anonymity in participatory research: Is it attainable? Is it desirable?SAGE

Roberts, H; Liabo, K; (2017) Anonymity in participatory research: Is it attainable? Is it desirable?SAGE. SAGE Research methods cases 10.4135/9781526437013. Green open access

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Abstract

Patient perspectives in multi-disciplinary study teams can add to the relevance, quality, and application of research. In the United Kingdom, ethics committees tend to distinguish patient and citizen involvement from research participation. This means that when researchers ask patients or citizens for advice on a study, or invite them to collaborate with the study team, they do not need ethical approval. This puts their input on a similar footing to clinicians, other practitioners, academics, and policy makers. But there are times when people’s input into study design and implementation derives from their participation as research “subjects.” This is more likely to be common in qualitative research, where a researcher’s interaction with participants may result in collaboration on data collection and analysis. Drawing on a study ...

Type: Article
Title: Anonymity in participatory research: Is it attainable? Is it desirable?SAGE
Open access status: An open access version is available from UCL Discovery
DOI: 10.4135/9781526437013
Publisher version: http://dx.doi.org/10.4135/9781526437013
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/10041773
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