eprintid: 1551282 rev_number: 31 eprint_status: archive userid: 608 dir: disk0/01/55/12/82 datestamp: 2017-04-15 22:57:48 lastmod: 2021-09-20 00:02:59 status_changed: 2017-06-06 13:57:02 type: article metadata_visibility: show creators_name: Brooks, AJ creators_name: Smith, PJ creators_name: Cohen, R creators_name: Collins, P creators_name: Douds, A creators_name: Forbes, V creators_name: Gaya, DR creators_name: Johnston, BT creators_name: McKiernan, PJ creators_name: Murray, CD creators_name: Sebastian, S creators_name: Smith, M creators_name: Whitley, L creators_name: Williams, L creators_name: Russell, RK creators_name: McCartney, SA creators_name: Lindsay, JO title: UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care ispublished: pub divisions: UCL divisions: B02 divisions: C10 divisions: D17 divisions: D16 keywords: Science & Technology, Life Sciences & Biomedicine, Gastroenterology & Hepatology, INFLAMMATORY-BOWEL-DISEASE, LIVER-TRANSPLANT RECIPIENTS, JUVENILE IDIOPATHIC ARTHRITIS, READINESS ASSESSMENT QUESTIONNAIRE, CONGENITAL HEART-DISEASE, QUALITY-OF-LIFE, HEALTH-CARE, CYSTIC-FIBROSIS, CHRONIC ILLNESS, CELIAC-DISEASE note: Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ abstract: The risks of poor transition include delayed and inappropriate transfer that can result in disengagement with healthcare. Structured transition care can improve control of chronic digestive diseases and long-term health-related outcomes. These are the first nationally developed guidelines on the transition of adolescent and young persons (AYP) with chronic digestive diseases from paediatric to adult care. They were commissioned by the Clinical Services and Standards Committee of the British Society of Gastroenterology under the auspices of the Adolescent and Young Persons (A&YP) Section. Electronic searches for English-language articles were performed with keywords relating to digestive system diseases and transition to adult care in the Medline (via Ovid), PsycInfo (via Ovid), Web of Science and CINAHL databases for studies published from 1980 to September 2014. The quality of evidence and grading of recommendations was appraised using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) system. The limited number of studies in gastroenterology and hepatology required the addition of relevant studies from other chronic diseases to be included. These guidelines deal specifically with the transition of AYP living with a diagnosis of chronic digestive disease and/or liver disease from paediatric to adult healthcare under the following headings; 1. Patient populations involved in AYP transition 2. Risks of failing transition or poor transition 3. Models of AYP transition 4. Patient and carer/parent perspective in AYP transition 5. Surgical perspective date: 2017-06 date_type: published publisher: BMJ PUBLISHING GROUP official_url: http://doi.org/10.1136/gutjnl-2016-313000 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green article_type_text: Article verified: verified_manual elements_id: 1210815 doi: 10.1136/gutjnl-2016-313000 lyricists_name: Cohen, Richard lyricists_name: Murray, Charles lyricists_name: Smith, Philip lyricists_id: RCOHE09 lyricists_id: CDRMU94 lyricists_id: PJSMI13 actors_name: Cohen, Richard actors_name: Laslett, David actors_id: RCOHE09 actors_id: DLASL34 actors_role: owner actors_role: impersonator full_text_status: public publication: Gut volume: 66 number: 6 pagerange: 988-1000 pages: 13 issn: 1468-3288 citation: Brooks, AJ; Smith, PJ; Cohen, R; Collins, P; Douds, A; Forbes, V; Gaya, DR; ... Lindsay, JO; + view all <#> Brooks, AJ; Smith, PJ; Cohen, R; Collins, P; Douds, A; Forbes, V; Gaya, DR; Johnston, BT; McKiernan, PJ; Murray, CD; Sebastian, S; Smith, M; Whitley, L; Williams, L; Russell, RK; McCartney, SA; Lindsay, JO; - view fewer <#> (2017) UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care. Gut , 66 (6) pp. 988-1000. 10.1136/gutjnl-2016-313000 <https://doi.org/10.1136/gutjnl-2016-313000>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/1551282/1/Cohen_988.full.pdf