eprintid: 1548895
rev_number: 32
eprint_status: archive
userid: 608
dir: disk0/01/54/88/95
datestamp: 2017-04-09 12:14:15
lastmod: 2021-09-21 21:59:48
status_changed: 2018-01-17 16:49:22
type: article
metadata_visibility: show
creators_name: Crane, L
creators_name: Chester, JW
creators_name: Goddard, L
creators_name: Henry, LA
creators_name: Hill, EL
title: Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom
ispublished: pub
divisions: UCL
divisions: B16
divisions: B14
divisions: J79
keywords: autism, autism spectrum disorder, diagnosis, parent, satisfaction, support, survey
note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
abstract: A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5 years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents.
date: 2016-02
date_type: published
publisher: SAGE PUBLICATIONS LTD
official_url: https://doi.org/10.1177/1362361315573636
oa_status: green
full_text_type: other
language: eng
primo: open
primo_central: open_green
article_type_text: Article
verified: verified_manual
elements_id: 1283801
doi: 10.1177/1362361315573636
lyricists_name: Crane, Laura
lyricists_id: LMCRA00
actors_name: Flynn, Bernadette
actors_id: BFFLY94
actors_role: owner
full_text_status: public
publication: Autism
volume: 20
number: 2
pagerange: 153-162
pages: 10
issn: 1461-7005
citation:        Crane, L;    Chester, JW;    Goddard, L;    Henry, LA;    Hill, EL;      (2016)    Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom.                   Autism , 20  (2)   pp. 153-162.    10.1177/1362361315573636 <https://doi.org/10.1177/1362361315573636>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/1548895/1/Crane_Experiences_autism_diagnosis.pdf