eprintid: 1548895 rev_number: 32 eprint_status: archive userid: 608 dir: disk0/01/54/88/95 datestamp: 2017-04-09 12:14:15 lastmod: 2021-09-21 21:59:48 status_changed: 2018-01-17 16:49:22 type: article metadata_visibility: show creators_name: Crane, L creators_name: Chester, JW creators_name: Goddard, L creators_name: Henry, LA creators_name: Hill, EL title: Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom ispublished: pub divisions: UCL divisions: B16 divisions: B14 divisions: J79 keywords: autism, autism spectrum disorder, diagnosis, parent, satisfaction, support, survey note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5 years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. date: 2016-02 date_type: published publisher: SAGE PUBLICATIONS LTD official_url: https://doi.org/10.1177/1362361315573636 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green article_type_text: Article verified: verified_manual elements_id: 1283801 doi: 10.1177/1362361315573636 lyricists_name: Crane, Laura lyricists_id: LMCRA00 actors_name: Flynn, Bernadette actors_id: BFFLY94 actors_role: owner full_text_status: public publication: Autism volume: 20 number: 2 pagerange: 153-162 pages: 10 issn: 1461-7005 citation: Crane, L; Chester, JW; Goddard, L; Henry, LA; Hill, EL; (2016) Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism , 20 (2) pp. 153-162. 10.1177/1362361315573636 <https://doi.org/10.1177/1362361315573636>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/1548895/1/Crane_Experiences_autism_diagnosis.pdf