eprintid: 1545371 rev_number: 29 eprint_status: archive userid: 608 dir: disk0/01/54/53/71 datestamp: 2017-03-18 20:42:53 lastmod: 2021-09-19 23:17:50 status_changed: 2018-01-09 11:12:02 type: article metadata_visibility: show creators_name: Krogh, K creators_name: Emmanuel, A creators_name: Perrouin-Verbe, B creators_name: Korsten, MA creators_name: Mulcahey, MJ creators_name: Biering-Sorensen, F title: International spinal cord injury bowel function basic data set (Version 2.0) ispublished: pub divisions: UCL divisions: B02 divisions: C10 divisions: D17 divisions: G91 keywords: Science & Technology, Life Sciences & Biomedicine, Clinical Neurology, Rehabilitation, Neurosciences & Neurology, AUTONOMIC DYSREFLEXIA, CONSTIPATION, DYSFUNCTION, RELIABILITY, PAIN note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: Study design: International expert working group. Objectives: To revise the International Spinal Cord Injury (SCI) Bowel Function Basic Data Set as a standardized format for the collecting and reporting of a minimal amount of information on bowel function in clinical practice and research. Setting: Working group appointed by the American Spinal injury association (ASIA) and the International Spinal Cord Society (ISCoS). Methods: The draft prepared by the working group was reviewed by the International SCI Data Set Committee and later by members of the ISCoS Executive and Scientific Committees and the ASIA board. The revised data set was posted on the ASIA and ISCoS websites for 1 month to allow further comments and suggestions. Changes resulting from a Delphi process among experts in children with SCI were included. Members of ISCoS Executive and Scientific Committees and the ASIA board made a final review and approved the data set. Results: The International SCI Bowel Function Basic Data Set (Version 2.0) consists of the following 16 items: date of data collection, gastrointestinal and anal sphincter dysfunction unrelated to SCI, surgical procedures on the gastrointestinal tract, defecation method and bowel-care procedures, average time required for defecation, frequency of defecation, uneasiness, headache or perspiration during defecation, digital stimulation or evacuation of the anorectum, frequency of fecal incontinence, flatus incontinence, need to wear pad or plug, oral laxatives and prokinetics, anti-diarrheal agents, perianal problems, abdominal pain and discomfort and the neurogenic bowel dysfunction score. Conclusion: The International SCI Bowel Function Basic Data Set (Version 2.0) has been developed. date: 2017-02-14 date_type: published publisher: NATURE PUBLISHING GROUP official_url: https://doi.org/10.1038/sc.2016.189 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green article_type_text: Article verified: verified_manual elements_id: 1210188 doi: 10.1038/sc.2016.189 lyricists_name: Emmanuel, Anton lyricists_id: AVEMM74 actors_name: Stacey, Thomas actors_id: TSSTA20 actors_role: owner full_text_status: public publication: Spinal Cord volume: 55 number: 7 pagerange: 692-698 pages: 7 issn: 1476-5624 citation: Krogh, K; Emmanuel, A; Perrouin-Verbe, B; Korsten, MA; Mulcahey, MJ; Biering-Sorensen, F; (2017) International spinal cord injury bowel function basic data set (Version 2.0). Spinal Cord , 55 (7) pp. 692-698. 10.1038/sc.2016.189 <https://doi.org/10.1038/sc.2016.189>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/1545371/1/Emmanuel_International%20SCI%20data%20set%20%28Version%202.0%29%20%28final.main%29.pdf