eprintid: 1545371
rev_number: 29
eprint_status: archive
userid: 608
dir: disk0/01/54/53/71
datestamp: 2017-03-18 20:42:53
lastmod: 2021-09-19 23:17:50
status_changed: 2018-01-09 11:12:02
type: article
metadata_visibility: show
creators_name: Krogh, K
creators_name: Emmanuel, A
creators_name: Perrouin-Verbe, B
creators_name: Korsten, MA
creators_name: Mulcahey, MJ
creators_name: Biering-Sorensen, F
title: International spinal cord injury bowel function basic data set (Version 2.0)
ispublished: pub
divisions: UCL
divisions: B02
divisions: C10
divisions: D17
divisions: G91
keywords: Science & Technology, Life Sciences & Biomedicine, Clinical Neurology, Rehabilitation, Neurosciences & Neurology, AUTONOMIC DYSREFLEXIA, CONSTIPATION, DYSFUNCTION, RELIABILITY, PAIN
note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
abstract: Study design:
International expert working group.

Objectives:
To revise the International Spinal Cord Injury (SCI) Bowel Function Basic Data Set as a standardized format for the collecting and reporting of a minimal amount of information on bowel function in clinical practice and research.

Setting:
Working group appointed by the American Spinal injury association (ASIA) and the International Spinal Cord Society (ISCoS).

Methods:
The draft prepared by the working group was reviewed by the International SCI Data Set Committee and later by members of the ISCoS Executive and Scientific Committees and the ASIA board. The revised data set was posted on the ASIA and ISCoS websites for 1 month to allow further comments and suggestions. Changes resulting from a Delphi process among experts in children with SCI were included. Members of ISCoS Executive and Scientific Committees and the ASIA board made a final review and approved the data set.

Results:
The International SCI Bowel Function Basic Data Set (Version 2.0) consists of the following 16 items: date of data collection, gastrointestinal and anal sphincter dysfunction unrelated to SCI, surgical procedures on the gastrointestinal tract, defecation method and bowel-care procedures, average time required for defecation, frequency of defecation, uneasiness, headache or perspiration during defecation, digital stimulation or evacuation of the anorectum, frequency of fecal incontinence, flatus incontinence, need to wear pad or plug, oral laxatives and prokinetics, anti-diarrheal agents, perianal problems, abdominal pain and discomfort and the neurogenic bowel dysfunction score.

Conclusion:
The International SCI Bowel Function Basic Data Set (Version 2.0) has been developed.
date: 2017-02-14
date_type: published
publisher: NATURE PUBLISHING GROUP
official_url: https://doi.org/10.1038/sc.2016.189
oa_status: green
full_text_type: other
language: eng
primo: open
primo_central: open_green
article_type_text: Article
verified: verified_manual
elements_id: 1210188
doi: 10.1038/sc.2016.189
lyricists_name: Emmanuel, Anton
lyricists_id: AVEMM74
actors_name: Stacey, Thomas
actors_id: TSSTA20
actors_role: owner
full_text_status: public
publication: Spinal Cord
volume: 55
number: 7
pagerange: 692-698
pages: 7
issn: 1476-5624
citation:        Krogh, K;    Emmanuel, A;    Perrouin-Verbe, B;    Korsten, MA;    Mulcahey, MJ;    Biering-Sorensen, F;      (2017)    International spinal cord injury bowel function basic data set (Version 2.0).                   Spinal Cord , 55  (7)   pp. 692-698.    10.1038/sc.2016.189 <https://doi.org/10.1038/sc.2016.189>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/1545371/1/Emmanuel_International%20SCI%20data%20set%20%28Version%202.0%29%20%28final.main%29.pdf