eprintid: 1536724
rev_number: 31
eprint_status: archive
userid: 608
dir: disk0/01/53/67/24
datestamp: 2017-01-22 00:17:30
lastmod: 2021-12-13 02:44:26
status_changed: 2017-03-16 17:17:01
type: article
metadata_visibility: show
creators_name: Hogarth, P
creators_name: Kurian, MA
creators_name: Gregory, A
creators_name: Csányi, B
creators_name: Zagustin, T
creators_name: Kmiec, T
creators_name: Wood, P
creators_name: Klucken, A
creators_name: Scalise, N
creators_name: Sofia, F
creators_name: Klopstock, T
creators_name: Zorzi, G
creators_name: Nardocci, N
creators_name: Hayflick, SJ
title: Consensus clinical management guideline for pantothenate kinase-associated neurodegeneration (PKAN).
ispublished: pub
divisions: UCL
divisions: B02
divisions: D13
divisions: G26
note: © 2017. This manuscript version is published under a Creative Commons Attribution Non-commercial Non-derivative 4.0 International licence (CC BY-NC-ND 4.0). This licence allows you to share, copy, distribute and transmit the work for personal and non-commercial use providing author and publisher attribution is clearly stated. Further details about CC BY licences are available at http://creativecommons.org/licenses/by/4.0. Access may be initially restricted by the publisher.
abstract: - Clinical experts have developed consensus opinions about the management of PKAN that can serve as a guideline for care.

- Guidance is provided for diagnosis and management, treatment and surveillance, including for status dystonicus and other emergency care, and education and psychosocial support.

- This guideline is a living document that will require ongoing review and revision.
date: 2017-03
date_type: published
official_url: http://dx.doi.org/10.1016/j.ymgme.2016.11.004
oa_status: green
full_text_type: other
language: eng
primo: open
primo_central: open_green
article_type_text: Journal Article
verified: verified_manual
elements_id: 1201732
doi: 10.1016/j.ymgme.2016.11.004
pii: S1096-7192(16)30293-1
language_elements: eng
lyricists_name: Kurian, Manju
lyricists_id: MKURI59
actors_name: Zahnhausen-Stuber, Petra
actors_id: PMZAH20
actors_role: owner
full_text_status: public
publication: Mol Genet Metab
volume: 120
number: 3
pagerange: 278-287
event_location: United States
issn: 1096-7206
citation:        Hogarth, P;    Kurian, MA;    Gregory, A;    Csányi, B;    Zagustin, T;    Kmiec, T;    Wood, P;                             ... Hayflick, SJ; + view all <#>        Hogarth, P;  Kurian, MA;  Gregory, A;  Csányi, B;  Zagustin, T;  Kmiec, T;  Wood, P;  Klucken, A;  Scalise, N;  Sofia, F;  Klopstock, T;  Zorzi, G;  Nardocci, N;  Hayflick, SJ;   - view fewer <#>    (2017)    Consensus clinical management guideline for pantothenate kinase-associated neurodegeneration (PKAN).                   Mol Genet Metab , 120  (3)   pp. 278-287.    10.1016/j.ymgme.2016.11.004 <https://doi.org/10.1016/j.ymgme.2016.11.004>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/1536724/1/Manzotti_PKAN%2520BP%2520Hayflick2.pdf