@article{discovery1536724, pages = {278--287}, note = {{\copyright} 2017. This manuscript version is published under a Creative Commons Attribution Non-commercial Non-derivative 4.0 International licence (CC BY-NC-ND 4.0). This licence allows you to share, copy, distribute and transmit the work for personal and non-commercial use providing author and publisher attribution is clearly stated. Further details about CC BY licences are available at http://creativecommons.org/licenses/by/4.0. Access may be initially restricted by the publisher.}, volume = {120}, journal = {Mol Genet Metab}, year = {2017}, title = {Consensus clinical management guideline for pantothenate kinase-associated neurodegeneration (PKAN).}, number = {3}, month = {March}, url = {http://dx.doi.org/10.1016/j.ymgme.2016.11.004}, abstract = {- Clinical experts have developed consensus opinions about the management of PKAN that can serve as a guideline for care. - Guidance is provided for diagnosis and management, treatment and surveillance, including for status dystonicus and other emergency care, and education and psychosocial support. - This guideline is a living document that will require ongoing review and revision.}, issn = {1096-7206}, author = {Hogarth, P and Kurian, MA and Gregory, A and Cs{\'a}nyi, B and Zagustin, T and Kmiec, T and Wood, P and Klucken, A and Scalise, N and Sofia, F and Klopstock, T and Zorzi, G and Nardocci, N and Hayflick, SJ} }