eprintid: 1477244
rev_number: 23
eprint_status: archive
userid: 608
dir: disk0/01/47/72/44
datestamp: 2016-03-31 15:42:55
lastmod: 2021-10-17 23:49:46
status_changed: 2016-03-31 15:42:55
type: article
metadata_visibility: show
creators_name: Lord, K
creators_name: Livingston, G
creators_name: Robertson, S
creators_name: Cooper, C
title: How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study
ispublished: pub
divisions: UCL
divisions: B02
divisions: C07
divisions: D79
keywords: Care home, Carers, Decision-making, Dementia, Place of care
note: This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://​creativecommons.​org/​licenses/​by/​4.​0/​), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://​creativecommons.​org/​publicdomain/​zero/​1.​0/​) applies to the data made available in this article, unless otherwise stated.
abstract: BACKGROUND: People with dementia and their relatives find decisions about the person with dementia living in a care home difficult. METHODS: We interviewed 20 people with dementia or family carers around the time of this decision in order to design a decision-aid. RESULTS: Decision-makers balanced the competing priorities of remaining somewhere familiar, family's wish they remain at home, reduction of risk and effects on carer's and person with dementia's physical health. The person with dementia frequently resented their lack of autonomy as decisions about care home moves were made after insight and judgment were impaired. Family consultation usually helped carers but sometimes exacerbated tensions. Direct professional support was appreciated where it was available. There is a need for healthcare professionals to facilitate these conversations around decision-making and to include more than signposting to other organisations. CONCLUSIONS: There is a need for a healthcare professional facilitated decision-aid. This should detail what might change for the person with dementia and their carer, possible resources and alternatives and assist in facilitating discussion with the wider family; further research will develop and test a tool to facilitate decision making about place of care needs.
date: 2016-03-21
date_type: published
official_url: http://dx.doi.org/10.1186/s12877-016-0242-1
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
article_type_text: Journal Article
verified: verified_manual
elements_id: 1120390
doi: 10.1186/s12877-016-0242-1
pii: 10.1186/s12877-016-0242-1
language_elements: eng
lyricists_name: Cooper, Claudia
lyricists_name: Livingston, Gillian
lyricists_name: Lord, Kathryn
lyricists_name: Robertson, Sarah
lyricists_id: CCOOP74
lyricists_id: GALIV58
lyricists_id: KDLOR60
lyricists_id: SROBE08
actors_name: Lord, Kathryn
actors_id: KDLOR60
actors_role: owner
full_text_status: public
publication: BMC Geriatrics
volume: 16
number: 1
pagerange: 68
event_location: England
issn: 1471-2318
citation:        Lord, K;    Livingston, G;    Robertson, S;    Cooper, C;      (2016)    How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study.                   BMC Geriatrics , 16  (1)   p. 68.    10.1186/s12877-016-0242-1 <https://doi.org/10.1186/s12877-016-0242-1>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/1477244/1/art%253A10.1186%252Fs12877-016-0242-1.pdf