eprintid: 10206266 rev_number: 9 eprint_status: archive userid: 699 dir: disk0/10/20/62/66 datestamp: 2025-03-19 14:21:48 lastmod: 2025-03-19 14:21:48 status_changed: 2025-03-19 14:21:48 type: article metadata_visibility: show sword_depositor: 699 creators_name: McDermott, Orii creators_name: Sobers, Thea creators_name: Mukadam, Naaheed creators_name: Lee, Abigail Rebecca creators_name: Orrell, Martin title: What Works Well for People With Dementia and Their Supporters From South Asian, African and Caribbean Communities in the UK: A Narrative Synthesis Systematic Review and Expert Consultations ispublished: pub divisions: UCL divisions: B02 divisions: C07 divisions: D79 divisions: FH5 keywords: African and Caribbean; care; dementia; preferred support; South Asian; systematic review note: Copyright © 2025 The Author(s). International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, https://creativecommons.org/licenses/by/4.0/, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. abstract: Objectives: This review aims to synthesise the evidence regarding the use and provision of dementia services and support for people with dementia and/or supporters from South Asian, African or Caribbean backgrounds living in the UK. // Methods: A narrative synthesis systematic review of the original research articles published up to April 2024 was conducted. A lay summary of the initial review findings was evaluated by experts-by-experience (n = 15) for scrutiny and to enable further discussions, to produce key recommendations for further developing dementia services. // Results: A total of 18 studies (16 qualitative and 2 mixed methods studies) met the full inclusion criteria and were included in the review. The review findings and experts-by-experience consultations highlighted that: (1) dementia is not openly discussed or disclosed within many diverse ethnic communities. This can lead to family carers and people with dementia feeling isolated and unsupported. (2) Mainstream dementia support services and hospitals often do not meet diverse communities' cultural and religious needs, and (3) home-based care supported by external care agencies can be helpful but ensuring consistency of care staff in their culturally appropriate care can be extremely difficult to ensure. // Conclusions: Encouraging South Asian, African and Caribbean communities to increase their dementia knowledge is important. However, mainstream dementia support services also need to incorporate their cultural and religious essentials into care packages to encourage their help seeking behaviours and tackle dementia stigma. Collaborative service developments between the diverse communities, Health and Social Care providers and policy makers are essential to ensure equitable and culturally appropriate dementia care for diverse community members in the future. date: 2025-03 date_type: published publisher: Wiley official_url: https://doi.org/10.1002/gps.70047 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 2366857 doi: 10.1002/gps.70047 medium: Print lyricists_name: Mukadam, Naaheed lyricists_id: NMUKA20 actors_name: Mukadam, Naaheed actors_id: NMUKA20 actors_role: owner funding_acknowledgements: [National Institute for Health and Care Research]; [ARC East Midlands]; [Alzheimer's Society] full_text_status: public publication: International Journal of Geriatric Psychiatry volume: 40 number: 3 article_number: e70047 event_location: England issn: 0885-6230 citation: McDermott, Orii; Sobers, Thea; Mukadam, Naaheed; Lee, Abigail Rebecca; Orrell, Martin; (2025) What Works Well for People With Dementia and Their Supporters From South Asian, African and Caribbean Communities in the UK: A Narrative Synthesis Systematic Review and Expert Consultations. International Journal of Geriatric Psychiatry , 40 (3) , Article e70047. 10.1002/gps.70047 <https://doi.org/10.1002/gps.70047>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10206266/1/Mukadam_Int%20J%20Geriat%20Psychiatry%20-%202025%20-%20McDermott%20-%20What%20Works%20Well%20for%20People%20With%20Dementia%20and%20Their%20Supporters%20From%20South%20Asian.pdf