eprintid: 10205906 rev_number: 7 eprint_status: archive userid: 699 dir: disk0/10/20/59/06 datestamp: 2025-03-11 13:06:07 lastmod: 2025-03-11 13:06:08 status_changed: 2025-03-11 13:06:07 type: article metadata_visibility: show sword_depositor: 699 creators_name: Baz, Sarah Akhtar creators_name: Woodrow, Mirembe creators_name: Clutterbuck, Donna creators_name: Fang, Chao creators_name: Mullard, Jordan creators_name: Banerjee, Amitava creators_name: Barley-McMullen, Sarah creators_name: Carpentieri, Jd creators_name: Donskoy, Anne-Laure creators_name: Faux-Nightingale, Alice creators_name: Lewis-Jackson, Sasha creators_name: O'Hara, Margaret E creators_name: Rai, Tanvi creators_name: Sherwood, Ondine creators_name: Smyth, Nina creators_name: Stanley, Kirsty creators_name: Welsh, Victoria creators_name: Mir, Ghazala creators_name: Alwan, Nisreen A title: Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy? ispublished: pub divisions: UCL divisions: B16 divisions: B02 divisions: B14 divisions: J80 divisions: DD4 keywords: Health inequalities; Long COVID; QLC network; qualitative note: Copyright © 2024 The Author(s). Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, https://creativecommons.org/licenses/by/4.0/, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. abstract: Introduction: Organised by the ‘Qualitative Long Covid Network’, a workshop for qualitative Long COVID (LC) researchers, LC charity representatives and people with LC took place in June 2023, where research on the intersectional inequalities affecting LC prevalence, recognition and care was shared and discussed. // Methods: Five key themes were drawn up from presentations, discussions and reflections during the workshop, which are presented in this study. // Results: The following five themes are discussed: the unfairness of LC, difficulties in accessing care, mistrust of the healthcare system, a lack of understanding of LC and experiences of stigma and discrimination. Factors that widen or narrow inequalities related to LC were identified. // Conclusion: A call to action is proposed to investigate and address inequalities through a robust LC research agenda that speaks with conviction to policy and decision-makers. We argue that there needs to be a strong investment in research and evidence-based policy and practice to mitigate the worst effects of the condition and address the inequalities in experience, treatment and support, which are experienced more often and more acutely by some of society's most vulnerable and disadvantaged individuals. // Patient and Public (PPI) Contribution: Projects included in this article had PPI ongoing activity to inform their research. A member of the CONVALESCENCE PPI group presented at the QLC Network ‘Long Covid and Health Inequalities’ workshop, as did members of Long COVID Kids, Long COVID Support and Long COVID SOS charities. They were all invited to be co-authors of this article. date: 2024-10 date_type: published publisher: WILEY official_url: https://doi.org/10.1111/hex.70047 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 2325505 doi: 10.1111/hex.70047 medium: Print lyricists_name: Carpentieri, Jon lyricists_name: Banerjee, Amitava lyricists_id: JDCAR32 lyricists_id: ABANE83 actors_name: Carpentieri, Jon actors_id: JDCAR32 actors_role: owner funding_acknowledgements: UKRI MC_PC_20051 [The CONVALESCENCE project funding (funders UKRI MC_PC_20051 and National Institute for Health and Care Research [NIHR] COV-LT-0009) funded the QLC network special theme workshop on 'Long Covid and Health Inequalities'.]; COV-LT-0009 [National Institute for Health and Care Research [NIHR]] full_text_status: public publication: Health Expectations volume: 27 number: 5 article_number: e70047 pages: 6 event_location: England issn: 1369-6513 citation: Baz, Sarah Akhtar; Woodrow, Mirembe; Clutterbuck, Donna; Fang, Chao; Mullard, Jordan; Banerjee, Amitava; Barley-McMullen, Sarah; ... Alwan, Nisreen A; + view all <#> Baz, Sarah Akhtar; Woodrow, Mirembe; Clutterbuck, Donna; Fang, Chao; Mullard, Jordan; Banerjee, Amitava; Barley-McMullen, Sarah; Carpentieri, Jd; Donskoy, Anne-Laure; Faux-Nightingale, Alice; Lewis-Jackson, Sasha; O'Hara, Margaret E; Rai, Tanvi; Sherwood, Ondine; Smyth, Nina; Stanley, Kirsty; Welsh, Victoria; Mir, Ghazala; Alwan, Nisreen A; - view fewer <#> (2024) Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy? Health Expectations , 27 (5) , Article e70047. 10.1111/hex.70047 <https://doi.org/10.1111/hex.70047>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10205906/1/Long%20Covid%20and%20health%20inequalities_what%27s%20next%20for%20research%20and%20policy%20advocacy.pdf