eprintid: 10205563
rev_number: 9
eprint_status: archive
userid: 699
dir: disk0/10/20/55/63
datestamp: 2025-03-04 14:13:32
lastmod: 2025-03-04 14:13:32
status_changed: 2025-03-04 14:13:32
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Saloniki, Eirini-Christina
creators_name: Lammons, William
creators_name: Markham, Sarah
title: Understanding disability from a secondary data lens perspective: Evidence from consultations with members of the public with disabilities in the UK
ispublished: pub
divisions: UCL
divisions: B02
keywords: Humans, Persons with Disabilities, United Kingdom, Surveys and Questionnaires, Models, Theoretical, Data Collection
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abstract: Disability is a multifaceted phenomenon, which complicates data collection about people with disabilities in surveys and censuses. A central issue is that the multiple underlying theoretical models about disability are seldomly made explicit yet strongly determine how data are collected and analysed by governments and organisations. It is crucial that such models together with other information about disability and its measurement are accessible and understood by everyone. This study comprised several UK survey searches for disability or disability-related questions and a series of consultations with members of the public with lived experience of disability to understand their perceptions of theoretical models of disability in survey questions. The findings highlighted the importance of continued involvement of people with lived experience in technical research activities. They further revealed that members of the public with lived experience can effectively become familiar with theoretical models of disability and how to analyse them in relation to survey questions subject to careful preparation, including practical examples.
date: 2025-02-21
date_type: published
publisher: Public Library of Science (PLoS)
official_url: https://doi.org/10.1371/journal.pone.0318409
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 2364788
doi: 10.1371/journal.pone.0318409
medium: Electronic-eCollection
pii: PONE-D-23-40740
lyricists_name: Saloniki, Eirini-Christina
lyricists_id: ESALO16
actors_name: Saloniki, Eirini-Christina
actors_id: ESALO16
actors_role: owner
full_text_status: public
publication: PLOS One
volume: 20
number: 2
article_number: e0318409
event_location: United States
editors_name: Ajidahun,, Adedayo
citation:        Saloniki, Eirini-Christina;    Lammons, William;    Markham, Sarah;      (2025)    Understanding disability from a secondary data lens perspective: Evidence from consultations with members of the public with disabilities in the UK.                   PLOS One , 20  (2)    , Article e0318409.  10.1371/journal.pone.0318409 <https://doi.org/10.1371/journal.pone.0318409>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10205563/1/Saloniki_journal.pone.0318409.pdf