eprintid: 10204898
rev_number: 12
eprint_status: archive
userid: 699
dir: disk0/10/20/48/98
datestamp: 2025-02-19 11:40:24
lastmod: 2025-02-19 11:40:24
status_changed: 2025-02-19 11:40:24
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: de Carvalho, RLS
creators_name: Fisher, E
creators_name: Natarajan, N
creators_name: Hui, EK
creators_name: Venkatesan, S
creators_name: Vaitheswaran, S
creators_name: Laksminarayanan, M
creators_name: Brum, PS
creators_name: Naylor-Batista, R
creators_name: Bertrand, E
creators_name: Mograbi, DC
creators_name: Ferri, CP
creators_name: Stoner, C
creators_name: Spector, A
title: Feasibility and Acceptability of a Virtual "dementia Awareness for Caregivers" Course in Brazil and India
ispublished: inpress
divisions: UCL
divisions: B02
divisions: C07
divisions: D05
divisions: D79
divisions: F66
divisions: FH5
note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions.
abstract: OBJECTIVE: To establish whether a virtual dementia awareness course is feasible for caregivers of people with dementia in Brazil and India. METHODS: A pre/posttest single group, multisite feasibility study, mixed methods exploratory design was applied. Primary caregivers of people with dementia in Brazil and India took a 3 to 4-hour course adapted for online delivery, with 10 to 15 caregivers. Measurements encompassed self-reports of carer competence, attitudes to dementia, and caregiver burden; satisfaction questionnaire completed immediately after the intervention; open-ended questions at 1-month follow-up to assess if caregivers applied information to caregiving role; semistructured interviews about how the intervention changed caregivers’ behavior and attitudes towards dementia. RESULTS: Of the 70 caregivers who received the intervention (Brazil = 34; India = 36), 54 (77.1%) completed postintervention outcomes, and 39 (55.7%) completed questionnaires at 1-month follow-up assessment. Significant improvements were observed in attitudes to dementia in both countries and self-perceived carer competence (in India) postintervention. The themes from the 9 semistructured interviews were: acceptability, feasibility, change of behavior/attitude, and suggestions for future sessions. CONCLUSIONS: Dementia awareness course was a feasible online intervention to improve dementia awareness among family caregivers across countries. It offers a standardized yet flexible methodology, with promising outcomes that need to be evaluated in a full randomized controlled trial.
date: 2025-01-20
date_type: published
publisher: Lippincott, Williams & Wilkins
official_url: https://doi.org/10.1097/wad.0000000000000659
full_text_type: other
language: eng
verified: verified_manual
elements_id: 2354678
doi: 10.1097/WAD.0000000000000659
medium: Print-Electronic
pii: 00002093-990000000-00141
lyricists_name: Fisher, Emily
lyricists_name: Spector, Aimee
lyricists_name: Hui, Kei Yan
lyricists_id: EFISH16
lyricists_id: AESPE69
lyricists_id: KEHUI62
actors_name: Spector, Aimee
actors_id: AESPE69
actors_role: owner
funding_acknowledgements: MRC: MR/S004009/1 [The United Kingdom Medical Research Council]; 185337 [Global Challenges Research Fund [GCRF] and Newton Consolidation Accounts (GNCA) funding]
full_text_status: restricted
publication: Alzheimer Disease & Associated Disorders
event_location: United States
citation:        de Carvalho, RLS;    Fisher, E;    Natarajan, N;    Hui, EK;    Venkatesan, S;    Vaitheswaran, S;    Laksminarayanan, M;                             ... Spector, A; + view all <#>        de Carvalho, RLS;  Fisher, E;  Natarajan, N;  Hui, EK;  Venkatesan, S;  Vaitheswaran, S;  Laksminarayanan, M;  Brum, PS;  Naylor-Batista, R;  Bertrand, E;  Mograbi, DC;  Ferri, CP;  Stoner, C;  Spector, A;   - view fewer <#>    (2025)    Feasibility and Acceptability of a Virtual "dementia Awareness for Caregivers" Course in Brazil and India.                   Alzheimer Disease & Associated Disorders        10.1097/WAD.0000000000000659 <https://doi.org/10.1097/WAD.0000000000000659>.    (In press).   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10204898/4/Spector_Feasibility%20and%20Acceptability%20of%20a%20Virtual%20dementia%20Awareness%20for%20Caregivers%20Course%20in%20Brazil%20and%20India_AAM.pdf