eprintid: 10191100
rev_number: 9
eprint_status: archive
userid: 699
dir: disk0/10/19/11/00
datestamp: 2024-04-23 12:11:28
lastmod: 2024-04-23 12:11:28
status_changed: 2024-04-23 12:11:28
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Robinson-Papp, Jessica
creators_name: Lawrence, Steven
creators_name: Wadley, Antonia
creators_name: Scott, Whitney
creators_name: George, Mary Catherine
creators_name: Josh, Jo
creators_name: O'Brien, Kelly K
creators_name: Price, Collen
creators_name: Uebelacker, Lisa
creators_name: Edelman, E Jennifer
creators_name: Evangeli, Michael
creators_name: Goodin, Burel R
creators_name: Harding, Richard
creators_name: Nkhoma, Kennedy
creators_name: Parker, Romy
creators_name: Sabin, Caroline
creators_name: Slawek, Deepika
creators_name: Tsui, Judith I
creators_name: Merlin, Jessica S
title: Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience
ispublished: inpress
divisions: UCL
divisions: B02
divisions: D01
divisions: G16
keywords: Chronic pain, HIV, pain treatment, patient engagement, research priorities, SDG 3: Good health and well-being
note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
abstract: The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain.
date: 2024-04-08
date_type: published
publisher: Informa UK Limited
official_url: https://doi.org/10.1080/09540121.2024.2334358
full_text_type: other
language: eng
verified: verified_manual
elements_id: 2266889
doi: 10.1080/09540121.2024.2334358
medium: Print-Electronic
lyricists_name: Sabin, Caroline
lyricists_id: CASAB15
actors_name: Sabin, Caroline
actors_id: CASAB15
actors_role: owner
full_text_status: restricted
publication: AIDS Care
event_location: England
issn: 0954-0121
citation:        Robinson-Papp, Jessica;    Lawrence, Steven;    Wadley, Antonia;    Scott, Whitney;    George, Mary Catherine;    Josh, Jo;    O'Brien, Kelly K;                                                 ... Merlin, Jessica S; + view all <#>        Robinson-Papp, Jessica;  Lawrence, Steven;  Wadley, Antonia;  Scott, Whitney;  George, Mary Catherine;  Josh, Jo;  O'Brien, Kelly K;  Price, Collen;  Uebelacker, Lisa;  Edelman, E Jennifer;  Evangeli, Michael;  Goodin, Burel R;  Harding, Richard;  Nkhoma, Kennedy;  Parker, Romy;  Sabin, Caroline;  Slawek, Deepika;  Tsui, Judith I;  Merlin, Jessica S;   - view fewer <#>    (2024)    Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience.                   AIDS Care        10.1080/09540121.2024.2334358 <https://doi.org/10.1080/09540121.2024.2334358>.    (In press).   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10191100/2/Sabin_Pain%20survey%20manuscript%2010.4.23.pdf