TY  - INPR
N2  - The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR?=?8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain.
KW  - Chronic pain
KW  -  HIV
KW  -  pain treatment
KW  -  patient engagement
KW  -  research priorities
KW  -  SDG 3: Good health and well-being
SN  - 0954-0121
A1  - Robinson-Papp, Jessica
A1  - Lawrence, Steven
A1  - Wadley, Antonia
A1  - Scott, Whitney
A1  - George, Mary Catherine
A1  - Josh, Jo
A1  - O'Brien, Kelly K
A1  - Price, Collen
A1  - Uebelacker, Lisa
A1  - Edelman, E Jennifer
A1  - Evangeli, Michael
A1  - Goodin, Burel R
A1  - Harding, Richard
A1  - Nkhoma, Kennedy
A1  - Parker, Romy
A1  - Sabin, Caroline
A1  - Slawek, Deepika
A1  - Tsui, Judith I
A1  - Merlin, Jessica S
AV  - restricted
UR  - https://doi.org/10.1080/09540121.2024.2334358
Y1  - 2024/04/08/
ID  - discovery10191100
N1  - This version is the author accepted manuscript. For information on re-use, please refer to the publisher?s terms and conditions.
TI  - Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience
JF  - AIDS Care
PB  - Informa UK Limited
ER  -