eprintid: 10177607
rev_number: 8
eprint_status: archive
userid: 699
dir: disk0/10/17/76/07
datestamp: 2023-09-27 08:56:57
lastmod: 2024-11-11 16:26:00
status_changed: 2023-09-27 08:56:57
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Hiremath, Sonya
creators_name: Doukrou, Montserrat
creators_name: Flannery, Halina
creators_name: Carey, Catherine
creators_name: Gregorowski, Anna
creators_name: Ward, Joseph
creators_name: Hargreaves, Dougal
creators_name: Segal, Terry Yvonne
title: Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS
ispublished: pub
subjects: UCH
divisions: UCL
divisions: B02
divisions: D13
divisions: G25
keywords: Science & Technology, Life Sciences & Biomedicine, Environmental Sciences, Public, Environmental & Occupational Health, Environmental Sciences & Ecology, adolescent, moderate, severe, chronic fatigue syndrome, myalgic encephalomyelitis, myalgic encephalopathy, outcomes, treatment, inpatient, measure, young people, long COVID
note: Copyright: © 2022 by the authors.
Licensee MDPI, Basel, Switzerland.
This article is an open access article
distributed under the terms and
conditions of the Creative Commons
Attribution (CC BY) license (https://
creativecommons.org/licenses/by/
4.0/)
abstract: Purpose of the study: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. Study Design: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. Results: A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities. Conclusion/Implications: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.
date: 2022-10-01
date_type: published
publisher: MDPI
official_url: https://doi.org/10.3390/ijerph192013608
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1985987
doi: 10.3390/ijerph192013608
medium: Electronic
pii: ijerph192013608
lyricists_name: Ward, Joseph
lyricists_id: JWARD28
actors_name: Flynn, Bernadette
actors_id: BFFLY94
actors_role: owner
full_text_status: public
publication: International Journal of Environmental Research and Public Health
volume: 19
number: 20
article_number: 13608
pages: 13
event_location: Switzerland
issn: 1661-7827
citation:        Hiremath, Sonya;    Doukrou, Montserrat;    Flannery, Halina;    Carey, Catherine;    Gregorowski, Anna;    Ward, Joseph;    Hargreaves, Dougal;           Hiremath, Sonya;  Doukrou, Montserrat;  Flannery, Halina;  Carey, Catherine;  Gregorowski, Anna;  Ward, Joseph;  Hargreaves, Dougal;  Segal, Terry Yvonne;   - view fewer <#>    (2022)    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS.                   International Journal of Environmental Research and Public Health , 19  (20)    , Article 13608.  10.3390/ijerph192013608 <https://doi.org/10.3390/ijerph192013608>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10177607/1/ijerph-19-13608.pdf