TY  - JOUR
EP  - 13
AV  - public
Y1  - 2022/10/01/
TI  - Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS
PB  - MDPI
ID  - discovery10177607
N2  - Purpose of the study: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. Study Design: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. Results: A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities. Conclusion/Implications: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.
KW  - Science & Technology
KW  -  Life Sciences & Biomedicine
KW  -  Environmental Sciences
KW  -  Public
KW  -  Environmental & Occupational Health
KW  -  Environmental Sciences & Ecology
KW  -  adolescent
KW  -  moderate
KW  -  severe
KW  -  chronic fatigue syndrome
KW  -  myalgic encephalomyelitis
KW  -  myalgic encephalopathy
KW  -  outcomes
KW  -  treatment
KW  -  inpatient
KW  -  measure
KW  -  young people
KW  -  long COVID
VL  - 19
N1  - Copyright: © 2022 by the authors.
Licensee MDPI, Basel, Switzerland.
This article is an open access article
distributed under the terms and
conditions of the Creative Commons
Attribution (CC BY) license (https://
creativecommons.org/licenses/by/
4.0/)
IS  - 20
SN  - 1661-7827
UR  - https://doi.org/10.3390/ijerph192013608
A1  - Hiremath, Sonya
A1  - Doukrou, Montserrat
A1  - Flannery, Halina
A1  - Carey, Catherine
A1  - Gregorowski, Anna
A1  - Ward, Joseph
A1  - Hargreaves, Dougal
A1  - Segal, Terry Yvonne
JF  - International Journal of Environmental Research and Public Health
ER  -