<> <http://www.w3.org/2000/01/rdf-schema#comment> "The repository administrator has not yet configured an RDF license."^^<http://www.w3.org/2001/XMLSchema#string> .
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<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://www.w3.org/1999/02/22-rdf-syntax-ns#type> <http://purl.org/ontology/bibo/Article> .
<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://purl.org/dc/terms/title> "Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://purl.org/ontology/bibo/abstract> "Purpose of the study: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. Study Design: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. Results: A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities. Conclusion/Implications: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome."^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://purl.org/dc/terms/date> "2022-10-01" .
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<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://purl.org/ontology/bibo/volume> "19" .
<https://discovery.ucl.ac.uk/id/eprint/10177607> <http://purl.org/ontology/bibo/issue> "20" .
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<https://discovery.ucl.ac.uk/id/person/ext-5cbb92fcb66a69d7c4c34f788e02bacb> <http://xmlns.com/foaf/0.1/givenName> "Catherine"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-5cbb92fcb66a69d7c4c34f788e02bacb> <http://xmlns.com/foaf/0.1/familyName> "Carey"^^<http://www.w3.org/2001/XMLSchema#string> .
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<https://discovery.ucl.ac.uk/id/person/ext-495e284ccfe175c050b283ff7a0a74e5> <http://xmlns.com/foaf/0.1/givenName> "Joseph"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-495e284ccfe175c050b283ff7a0a74e5> <http://xmlns.com/foaf/0.1/familyName> "Ward"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-495e284ccfe175c050b283ff7a0a74e5> <http://xmlns.com/foaf/0.1/name> "Joseph Ward"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-93c4ce5903033952201857a6697f633c> <http://www.w3.org/1999/02/22-rdf-syntax-ns#type> <http://xmlns.com/foaf/0.1/Person> .
<https://discovery.ucl.ac.uk/id/person/ext-93c4ce5903033952201857a6697f633c> <http://xmlns.com/foaf/0.1/givenName> "Montserrat"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-93c4ce5903033952201857a6697f633c> <http://xmlns.com/foaf/0.1/familyName> "Doukrou"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-93c4ce5903033952201857a6697f633c> <http://xmlns.com/foaf/0.1/name> "Montserrat Doukrou"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-d80a66b5d89f6e21d896e79dc56c9c18> <http://www.w3.org/1999/02/22-rdf-syntax-ns#type> <http://xmlns.com/foaf/0.1/Person> .
<https://discovery.ucl.ac.uk/id/person/ext-d80a66b5d89f6e21d896e79dc56c9c18> <http://xmlns.com/foaf/0.1/givenName> "Anna"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-d80a66b5d89f6e21d896e79dc56c9c18> <http://xmlns.com/foaf/0.1/familyName> "Gregorowski"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-d80a66b5d89f6e21d896e79dc56c9c18> <http://xmlns.com/foaf/0.1/name> "Anna Gregorowski"^^<http://www.w3.org/2001/XMLSchema#string> .
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<https://discovery.ucl.ac.uk/id/person/ext-8816e89dbea0bebc52c903a785e89cf9> <http://xmlns.com/foaf/0.1/givenName> "Sonya"^^<http://www.w3.org/2001/XMLSchema#string> .
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<https://discovery.ucl.ac.uk/id/person/ext-8816e89dbea0bebc52c903a785e89cf9> <http://xmlns.com/foaf/0.1/name> "Sonya Hiremath"^^<http://www.w3.org/2001/XMLSchema#string> .
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<https://discovery.ucl.ac.uk/id/person/ext-3eb3bec0c66faccfd261913bc110eb5f> <http://xmlns.com/foaf/0.1/givenName> "Halina"^^<http://www.w3.org/2001/XMLSchema#string> .
<https://discovery.ucl.ac.uk/id/person/ext-3eb3bec0c66faccfd261913bc110eb5f> <http://xmlns.com/foaf/0.1/familyName> "Flannery"^^<http://www.w3.org/2001/XMLSchema#string> .
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