@article{discovery10177607,
           month = {October},
          number = {20},
       publisher = {MDPI},
           title = {Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS},
            year = {2022},
         journal = {International Journal of Environmental Research and Public Health},
          volume = {19},
            note = {Copyright: {\copyright} 2022 by the authors.
Licensee MDPI, Basel, Switzerland.
This article is an open access article
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conditions of the Creative Commons
Attribution (CC BY) license (https://
creativecommons.org/licenses/by/
4.0/)},
        keywords = {Science \& Technology, Life Sciences \& Biomedicine, Environmental Sciences, Public, Environmental \& Occupational Health, Environmental Sciences \& Ecology, adolescent, moderate, severe, chronic fatigue syndrome, myalgic encephalomyelitis, myalgic encephalopathy, outcomes, treatment, inpatient, measure, young people, long COVID},
        abstract = {Purpose of the study: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. Study Design: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. Results: A total of 23/27 (85\%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70\%) of patients showed improvement in physical ability. In 15/23 patients (65\%), there was an improvement in ability to access education, in 12/24 (50\%) sleep improved, and 16/27 (59\%) demonstrated an improvement in socialising/ability perform recreational activities. Conclusion/Implications: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85\% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.},
            issn = {1661-7827},
          author = {Hiremath, Sonya and Doukrou, Montserrat and Flannery, Halina and Carey, Catherine and Gregorowski, Anna and Ward, Joseph and Hargreaves, Dougal and Segal, Terry Yvonne},
             url = {https://doi.org/10.3390/ijerph192013608}
}