eprintid: 10159026 rev_number: 7 eprint_status: archive userid: 699 dir: disk0/10/15/90/26 datestamp: 2022-11-14 12:39:45 lastmod: 2022-11-14 12:39:45 status_changed: 2022-11-14 12:39:45 type: article metadata_visibility: show sword_depositor: 699 creators_name: Paulauskaite, Laura creators_name: Totsika, Vasiliki creators_name: Rivas, Carol title: Relationships and Sex Education Outcomes for Students With Intellectual Disability: Protocol for the Development of a Core Outcome Set ispublished: pub divisions: UCL divisions: B16 divisions: B02 divisions: B14 divisions: J81 divisions: C07 divisions: D79 divisions: FH7 keywords: core outcome set; relationships and sex education; intellectual disability (5); students (16) note: © Laura Paulauskaite, Vasiliki Totsika, Carol Rivas. Originally published in JMIR Research Protocols (https://www.researchprotocols.org). This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/). abstract: BACKGROUND: People with intellectual disability are twice as likely to experience sexual abuse, unintended pregnancies, and sexually transmitted diseases as people in the general population. Despite this, very little is known about how to deliver relationships and sex education effectively to this vulnerable population, how to measure the impact of its delivery in schools, and what stakeholders perceive as important outcomes of this education. OBJECTIVE: To address these urgent issues, this study aims to develop a stakeholder consensus–based core outcome set of relationships and sex education for use in research and educational settings with students with intellectual disability. METHODS: The study will use a 2-stage mixed methods design. The first stage will involve a systematic review of relationships and sex education outcomes reported in the literature, followed by qualitative exploration with caregivers, teachers and school staff, policy makers, and researchers to investigate their perspectives of meaningful outcomes of this education. Students with intellectual disability will be enabled to take part to express their views on outcomes of importance to them. The second stage will use findings from stage 1 in a 2-round web-based Delphi study with caregivers, teachers and school staff, policy makers, and researchers to develop consensus on proposed outcomes for the evaluation of relationships and sex education with this population. RESULTS: As of September 2022, we have completed a systematic review and recruited 56 stakeholders (n=53, 95%, adults and n=3, 5%, students with intellectual disability) for the first stage of the study. We are still recruiting students with intellectual disability. Data analysis has not started yet. Recruitment for the second stage will commence in November 2022. We expect to complete the study by October 2023 and publish the results by the end of 2024. CONCLUSIONS: The development of a core outcome set of relationships and sex education will provide a significant first step to assist the implementation, delivery, evaluation, and sustainability of relationships and sex education for students with intellectual disability. Key audiences will be teachers, researchers, policy makers, and decision makers. date: 2022-11 date_type: published publisher: JMIR Publications Inc. official_url: https://doi.org/10.2196/39921 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1982729 doi: 10.2196/39921 lyricists_name: Rivas, Carol lyricists_name: Totsika, Vasiliki lyricists_name: Paulauskaite, Laura lyricists_id: CARIV33 lyricists_id: VTOTS67 lyricists_id: LPAUL35 actors_name: Flynn, Bernadette actors_id: BFFLY94 actors_role: owner full_text_status: public publication: JMIR Research Protocols volume: 11 number: 11 article_number: e39921 citation: Paulauskaite, Laura; Totsika, Vasiliki; Rivas, Carol; (2022) Relationships and Sex Education Outcomes for Students With Intellectual Disability: Protocol for the Development of a Core Outcome Set. JMIR Research Protocols , 11 (11) , Article e39921. 10.2196/39921 <https://doi.org/10.2196/39921>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10159026/1/PDF.pdf