?url_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Adc&rft.title=Children's+and+Parents'+Consent+to+Heart+Surgery%3A+End+of+project+report+to+the+British+Heart+Foundation&rft.creator=Alderson%2C+Priscilla&rft.creator=Mendizabal%2C+Rosa&rft.creator=Sutcliffe%2C+Katy&rft.description=This+social+science+project+is+seeking+to+advance+the+debate+on+informed+consent.+The+prospect+of+having+any+kind+of+medical+procedure+can+be+stressful+and+worrying%2C+but+often+if+we+find+out+more+about+it+and+know+what+to+expect%2C+some+of+those+worries+can+be+eased.+But+knowing+at+what+stage+and+how+to+inform+and+involve+children+in+decisions+about+their+planned+heart+surgery+is+tricky.+When+are+they+old+enough+to+give+consent%2C+and+when+should+it+be+left+to+their+parents%3F+Dr+Sutcliffe+and+colleagues+will+address+these+questions+by+interviewing+40+patients+aged+6-15+before+and+after+heart+surgery%2C+their+parents+and+20+doctors+and+nurses.+Through+these+interviews+they+will+collect+views+on+the+best+ways+to+inform%2C+respect%2C+support+and+involve+young+patients+and+their+parents+before+surgery.+The+current+practices+around+informed+consent+will+also+be+observed+in+two+hospitals+and+the+related+legal%2C+medical+and+ethical+debates+will+be+reviewed.+This+project+aims+to+inform+policy+on+the+issue+of+informed+consent+for+children.+The+findings+will+help+healthcare+professionals+and+parents+understand+when+and+how+best+to+seek+children%E2%80%99s+views+about+their+own+heart+surgery%2C+to+minimise+their+stress%2C+fear+and+misunderstanding.&rft.publisher=British+Heart+Foundation&rft.date=2021-07&rft.type=Report&rft.language=eng&rft.source=++++British+Heart+Foundation%3A+London%2C+UK.+++++&rft.format=text&rft.identifier=https%3A%2F%2Fdiscovery.ucl.ac.uk%2Fid%2Feprint%2F10152216%2F1%2FSutcliffe_Childrens%2520and%2520Parents%2520Consent%2520to%2520Heart%2520Surgery.%2520End%2520of%2520project%2520report%2520to%2520the%2520British%2520Heart%2520Foundation_report.pdf&rft.identifier=https%3A%2F%2Fdiscovery.ucl.ac.uk%2Fid%2Feprint%2F10152216%2F&rft.rights=open