eprintid: 10152023 rev_number: 7 eprint_status: archive userid: 699 dir: disk0/10/15/20/23 datestamp: 2022-07-14 11:18:21 lastmod: 2022-07-14 11:18:21 status_changed: 2022-07-14 11:18:21 type: article metadata_visibility: show sword_depositor: 699 creators_name: Lloyd, Kelly E creators_name: Hall, Louise H creators_name: Ziegler, Lucy creators_name: Smith, Samuel G title: Breast cancer worry in higher-risk women offered preventive therapy: a UK multicentre prospective study ispublished: pub divisions: C10 divisions: G88 divisions: B02 divisions: UCL divisions: D16 keywords: Science & Technology, Life Sciences & Biomedicine, Oncology, Preventive therapy, Chemoprevention, Decision-making, Cancer worry note: This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third-party material in this article are included in the Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ abstract: PURPOSE: Women's worry about developing breast cancer may influence their decision to use preventive therapy. However, the direction of this relationship has been questioned. We prospectively investigated the relationship between breast cancer worry and uptake of preventive therapy. The socio-demographic and clinical factors associated with high breast cancer worry were also investigated. METHODS: Women at increased risk of developing breast cancer were recruited from clinics across England (n = 408). Participants completed a survey on their breast cancer worry, socio-demographic and clinical factors. Uptake of tamoxifen was recorded at 3 months (n = 258 women, 63.2%). Both primary and sensitivity analyses were conducted using different classifications of low, medium and high worry. RESULTS: 39.5% of respondents reported medium breast cancer worry at baseline and 21.2% reported high worry. Ethnic minority women were more likely to report high worry than white women (OR = 3.02, 95%CI 1.02, 8.91, p = 0.046). Women educated below degree level were more likely to report high worry than those with higher education (OR = 2.29, 95%CI 1.28, 4.09, p = 0.005). No statistically significant association was observed between worry and uptake. In the primary analysis, fewer respondents with medium worry at baseline initiated tamoxifen (low worry = 15.5%, medium = 13.5%, high = 15.7%). In the sensitivity analysis, participants with medium worry reported the highest uptake of tamoxifen (19.7%). CONCLUSIONS: No association was observed between worry and uptake, although the relationship was affected by the categorisation of worry. Standardised reporting of the classification of worry is warranted to allow transparent comparisons across cohorts. date: 2021-03-17 date_type: published publisher: SPRINGER official_url: https://doi.org/10.1007/s10549-021-06183-x oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1965439 doi: 10.1007/s10549-021-06183-x pii: 10.1007/s10549-021-06183-x lyricists_name: Vaidya, Jayant lyricists_id: JSVAI17 actors_name: Vaidya, Jayant actors_id: JSVAI17 actors_role: owner funding_acknowledgements: C42785/A17965 [Cancer Research UK]; [Yorkshire Cancer Research University Academic Fellowship]; [Economic and Social Research Council] full_text_status: public publication: Breast Cancer Research and Treatment volume: 188 number: 3 pagerange: 703-712 pages: 10 event_location: Netherlands citation: Lloyd, Kelly E; Hall, Louise H; Ziegler, Lucy; Smith, Samuel G; (2021) Breast cancer worry in higher-risk women offered preventive therapy: a UK multicentre prospective study. Breast Cancer Research and Treatment , 188 (3) pp. 703-712. 10.1007/s10549-021-06183-x <https://doi.org/10.1007/s10549-021-06183-x>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10152023/1/Lloyd2021_Article_BreastCancerWorryInHigher-risk.pdf