eprintid: 10151938
rev_number: 9
eprint_status: archive
userid: 699
dir: disk0/10/15/19/38
datestamp: 2022-07-13 09:47:34
lastmod: 2022-07-13 09:47:34
status_changed: 2022-07-13 09:47:34
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Myring, Gareth
creators_name: Mitchell, Paul Mark
creators_name: Kernohan, W George
creators_name: McIlfatrick, Sonja
creators_name: Cudmore, Sarah
creators_name: Finucane, Anne M
creators_name: Graham-Wisener, Lisa
creators_name: Hewison, Alistair
creators_name: Jones, Louise
creators_name: Jordan, Joanne
creators_name: McKibben, Laurie
creators_name: Muldrew, Deborah HL
creators_name: Zafar, Shazia
creators_name: Coast, Joanna
title: An analysis of the construct validity and responsiveness of the ICECAP-SCM capability wellbeing measure in a palliative care hospice setting
ispublished: pub
divisions: C07
divisions: D79
divisions: B02
divisions: UCL
keywords: Economic evaluation, Hospice care, Palliative care, Patient reported outcome measures, Psychometrics, Quality of life
note: This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
abstract: BACKGROUND: For outcome measures to be useful in health and care decision-making, they need to have certain psychometric properties. The ICECAP-Supportive Care Measure (ICECAP-SCM), a seven attribute measure (1. Choice, 2. Love and affection, 3. Physical suffering, 4. Emotional suffering, 5. Dignity, 6. Being supported, 7. Preparation) developed for use in economic evaluation of end-of-life interventions, has face validity and is feasible to use. This study aimed to assess the construct validity and responsiveness of the ICECAP-SCM in hospice inpatient and outpatient settings. METHODS: A secondary analysis of data collated from two studies, one focusing on palliative care day services and the other on constipation management, undertaken in the same national hospice organisation across three UK hospices, was conducted. Other quality of life and wellbeing outcome measures used were the EQ-5D-5L, McGill Quality of Life Questionnaire - Expanded (MQOL-E), Patient Health Questionnaire-2 (PHQ-2) and Palliative Outcomes Scale Symptom list (POS-S). The construct validity of the ICECAP-SCM was assessed, following hypotheses generation, by calculating correlations between: (i) its domains and the domains of other outcome measures, (ii) its summary score and the other measures' domains, (iii) its summary score and the summary scores of the other measures. The responsiveness of the ICECAP-SCM was assessed using anchor-based methods to understand change over time. Statistical analysis consisted of Spearman and Pearson correlations for construct validity and paired t-tests for the responsiveness analysis. RESULTS: Sixty-eight participants were included in the baseline analysis. Five strong correlations were found with ICECAP-SCM attributes and items on the other measures: four with the Emotional suffering attribute (Anxiety/depression on EQ-5D-5L, Psychological and Burden on MQOL-E and Feeling down, depressed or hopeless on PHQ-2), and one with Physical suffering (Weakness or lack of energy on POS-S). ICECAP-SCM attributes and scores were most strongly associated with the MQOL-E measure (0.73 correlation coefficient between summary scores). The responsiveness analysis (n = 36) showed the ICECAP-SCM score was responsive to change when anchored to changes on the MQOL-E over time (p < 0.05). CONCLUSIONS: This study provides initial evidence of construct validity and responsiveness of the ICECAP-SCM in hospice settings and suggests its potential for use in end-of-life care research.
date: 2022-07-08
date_type: published
publisher: Springer Science and Business Media LLC
official_url: https://doi.org/10.1186/s12904-022-01012-4
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1965282
doi: 10.1186/s12904-022-01012-4
medium: Electronic
pii: 10.1186/s12904-022-01012-4
lyricists_name: Jones, Caroline
lyricists_id: CLJON95
actors_name: Jones, Caroline
actors_id: CLJON95
actors_role: owner
funding_acknowledgements: A20993 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A20993 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A17114 [Marie Curie]; A20993 [Marie Curie]; A17114 [Marie Curie]; A20993 [Marie Curie]; 205284/Z/16/Z [Wellcome Trust]; 205284/Z/16/Z [Wellcome Trust]
full_text_status: public
publication: BMC Palliative Care
volume: 21
number: 1
article_number: 121
event_location: England
citation:        Myring, Gareth;    Mitchell, Paul Mark;    Kernohan, W George;    McIlfatrick, Sonja;    Cudmore, Sarah;    Finucane, Anne M;    Graham-Wisener, Lisa;                             ... Coast, Joanna; + view all <#>        Myring, Gareth;  Mitchell, Paul Mark;  Kernohan, W George;  McIlfatrick, Sonja;  Cudmore, Sarah;  Finucane, Anne M;  Graham-Wisener, Lisa;  Hewison, Alistair;  Jones, Louise;  Jordan, Joanne;  McKibben, Laurie;  Muldrew, Deborah HL;  Zafar, Shazia;  Coast, Joanna;   - view fewer <#>    (2022)    An analysis of the construct validity and responsiveness of the ICECAP-SCM capability wellbeing measure in a palliative care hospice setting.                   BMC Palliative Care , 21  (1)    , Article 121.  10.1186/s12904-022-01012-4 <https://doi.org/10.1186/s12904-022-01012-4>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10151938/1/Jones_s12904-022-01012-4.pdf