eprintid: 10149234
rev_number: 7
eprint_status: archive
userid: 699
dir: disk0/10/14/92/34
datestamp: 2022-05-26 15:08:15
lastmod: 2022-05-26 15:08:15
status_changed: 2022-05-26 15:08:15
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Angus-Leppan, Heather
creators_name: Caulfield, Alice
creators_name: Moghim, Melika M
creators_name: Nightingale, Jennifer
creators_name: Sloan, Rob
creators_name: Stables, Tom
creators_name: Oates, Michael
creators_name: Porter, Bernadette
creators_name: Schrag, Anette
title: Confidence College – an online education tool for neurology patients
ispublished: pub
divisions: C07
divisions: F84
divisions: B02
divisions: UCL
divisions: D07
note: © 2022 ACNR. Original content in this article is licensed under the terms of the Creative Commons Attribution 4.0 International (CC BY 4.0) Licence (https://creativecommons.org/licenses/by/4.0/).
abstract: COVID-19 and its aftermath highlight the importance of patient self-care and involvement in monitoring and improving their health. Resources to guide this are essential.  Our objective was to create a web-based patient education tool, to facilitate patient education and empowerment for people with epilepsy, multiple sclerosis and Parkinson’s disease, available without cost to patients, carers and clinicians.  This project was conducted within community and secondary neurology services. Patients and their carers were involved in designing, reviewing and revising the tool, as equal partners with clinicians and digital engineers.  A web-based design template was developed with graphics and links to enable patients to create personalised plans. Participants are patients, carers, clinicians (neurology consultants and specialist nurses), neurological charities, the London Neuroscience Clinical Network, NHS England and Shift.ms (a service design team with experience in creating digital services for individuals living with neurological conditions). Shift.ms conducted in-depth interviews. Clinicians used evidence from personal and PubMed databases. Shift.ms analysed and co-ordinated the responses, and designed the pilot tool.  Confidence College provides a delivery model for patient education relating to multiple sclerosis, epilepsy and Parkinson’s disease. It requires follow-up evaluation regarding uptake.  This web-based accessible patient empowerment tool has no limit on recurrent use, low maintenance costs and no additional costs in up-scaling the number of users. It is ideally suited for use during and after the COVID-19 pandemic.
date: 2022-05
date_type: published
publisher: Whitehouse Publishing
official_url: https://doi.org/10.47795/irgc6828
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1957933
doi: 10.47795/irgc6828
lyricists_name: Schrag, Anette
lyricists_id: AESCH71
actors_name: Flynn, Bernadette
actors_id: BFFLY94
actors_role: owner
full_text_status: public
publication: Advances in Clinical Neuroscience and Rehabilitation
volume: 21
number: 2
pagerange: 6-9
citation:        Angus-Leppan, Heather;    Caulfield, Alice;    Moghim, Melika M;    Nightingale, Jennifer;    Sloan, Rob;    Stables, Tom;    Oates, Michael;         ... Schrag, Anette; + view all <#>        Angus-Leppan, Heather;  Caulfield, Alice;  Moghim, Melika M;  Nightingale, Jennifer;  Sloan, Rob;  Stables, Tom;  Oates, Michael;  Porter, Bernadette;  Schrag, Anette;   - view fewer <#>    (2022)    Confidence College – an online education tool for neurology patients.                   Advances in Clinical Neuroscience and Rehabilitation , 21  (2)   pp. 6-9.    10.47795/irgc6828 <https://doi.org/10.47795/irgc6828>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10149234/1/ACNR-vol-212-Angus-Leppan.pdf