eprintid: 10149234 rev_number: 7 eprint_status: archive userid: 699 dir: disk0/10/14/92/34 datestamp: 2022-05-26 15:08:15 lastmod: 2022-05-26 15:08:15 status_changed: 2022-05-26 15:08:15 type: article metadata_visibility: show sword_depositor: 699 creators_name: Angus-Leppan, Heather creators_name: Caulfield, Alice creators_name: Moghim, Melika M creators_name: Nightingale, Jennifer creators_name: Sloan, Rob creators_name: Stables, Tom creators_name: Oates, Michael creators_name: Porter, Bernadette creators_name: Schrag, Anette title: Confidence College – an online education tool for neurology patients ispublished: pub divisions: C07 divisions: F84 divisions: B02 divisions: UCL divisions: D07 note: © 2022 ACNR. Original content in this article is licensed under the terms of the Creative Commons Attribution 4.0 International (CC BY 4.0) Licence (https://creativecommons.org/licenses/by/4.0/). abstract: COVID-19 and its aftermath highlight the importance of patient self-care and involvement in monitoring and improving their health. Resources to guide this are essential. Our objective was to create a web-based patient education tool, to facilitate patient education and empowerment for people with epilepsy, multiple sclerosis and Parkinson’s disease, available without cost to patients, carers and clinicians. This project was conducted within community and secondary neurology services. Patients and their carers were involved in designing, reviewing and revising the tool, as equal partners with clinicians and digital engineers. A web-based design template was developed with graphics and links to enable patients to create personalised plans. Participants are patients, carers, clinicians (neurology consultants and specialist nurses), neurological charities, the London Neuroscience Clinical Network, NHS England and Shift.ms (a service design team with experience in creating digital services for individuals living with neurological conditions). Shift.ms conducted in-depth interviews. Clinicians used evidence from personal and PubMed databases. Shift.ms analysed and co-ordinated the responses, and designed the pilot tool. Confidence College provides a delivery model for patient education relating to multiple sclerosis, epilepsy and Parkinson’s disease. It requires follow-up evaluation regarding uptake. This web-based accessible patient empowerment tool has no limit on recurrent use, low maintenance costs and no additional costs in up-scaling the number of users. It is ideally suited for use during and after the COVID-19 pandemic. date: 2022-05 date_type: published publisher: Whitehouse Publishing official_url: https://doi.org/10.47795/irgc6828 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1957933 doi: 10.47795/irgc6828 lyricists_name: Schrag, Anette lyricists_id: AESCH71 actors_name: Flynn, Bernadette actors_id: BFFLY94 actors_role: owner full_text_status: public publication: Advances in Clinical Neuroscience and Rehabilitation volume: 21 number: 2 pagerange: 6-9 citation: Angus-Leppan, Heather; Caulfield, Alice; Moghim, Melika M; Nightingale, Jennifer; Sloan, Rob; Stables, Tom; Oates, Michael; ... Schrag, Anette; + view all <#> Angus-Leppan, Heather; Caulfield, Alice; Moghim, Melika M; Nightingale, Jennifer; Sloan, Rob; Stables, Tom; Oates, Michael; Porter, Bernadette; Schrag, Anette; - view fewer <#> (2022) Confidence College – an online education tool for neurology patients. Advances in Clinical Neuroscience and Rehabilitation , 21 (2) pp. 6-9. 10.47795/irgc6828 <https://doi.org/10.47795/irgc6828>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10149234/1/ACNR-vol-212-Angus-Leppan.pdf