TY  - JOUR
PB  - BMC
A1  - Munblit, Daniel
A1  - Nicholson, Timothy R
A1  - Needham, Dale M
A1  - Seylanova, Nina
A1  - Parr, Callum
A1  - Chen, Jessica
A1  - Kokorina, Alisa
A1  - Sigfrid, Louise
A1  - Buonsenso, Danilo
A1  - Bhatnagar, Shinjini
A1  - Thiruvengadam, Ramachandran
A1  - Parker, Ann M
A1  - Preller, Jacobus
A1  - Avdeev, Sergey
A1  - Klok, Frederikus A
A1  - Tong, Allison
A1  - Diaz, Janet V
A1  - De Groote, Wouter
A1  - Schiess, Nicoline
A1  - Akrami, Athena
A1  - Simpson, Frances
A1  - Olliaro, Piero
A1  - Apfelbacher, Christian
A1  - Rosa, Regis Goulart
A1  - Chevinsky, Jennifer R
A1  - Saydah, Sharon
A1  - Schmitt, Jochen
A1  - Guekht, Alla
A1  - Gorst, Sarah L
A1  - Genuneit, Jon
A1  - Reyes, Luis Felipe
A1  - Asmanov, Alan
A1  - O'Hara, Margaret E
A1  - Scott, Janet T
A1  - Michelen, Melina
A1  - Stavropoulou, Charitini
A1  - Warner, John O
A1  - Herridge, Margaret
A1  - Williamson, Paula R
JF  - BMC Medicine
KW  - Science & Technology
KW  -  Life Sciences & Biomedicine
KW  -  Medicine
KW  -  General & Internal
KW  -  General & Internal Medicine
KW  -  COVID-19
KW  -  COVID-19 sequalae
KW  -  Long COVID
KW  -  Post-acute sequelae of SARS-CoV-2 infection
KW  -  PASC
KW  -  Post-COVID-19 condition
KW  -  Outcomes
KW  -  Core Outcome Set
KW  -  RESPIRATORY-FAILURE
KW  -  SURVIVORS
VL  - 20
N1  - This work is licensed under a Creative Commons Attribution 4.0 International License. The images
or other third-party material in this article are included in the Creative Commons license,
unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license,
users will need to obtain permission from the license holder to reproduce the material. To view a copy of this
license, visit http://creativecommons.org/licenses/by/4.0/
IS  - 1
N2  - BACKGROUND: A substantial portion of people with COVID-19 subsequently experience lasting symptoms including fatigue, shortness of breath, and neurological complaints such as cognitive dysfunction many months after acute infection. Emerging evidence suggests that this condition, commonly referred to as long COVID but also known as post-acute sequelae of SARS-CoV-2 infection (PASC) or post-COVID-19 condition, could become a significant global health burden. MAIN TEXT: While the number of studies investigating the post-COVID-19 condition is increasing, there is no agreement on how this new disease should be defined and diagnosed in clinical practice and what relevant outcomes to measure. There is an urgent need to optimise and standardise outcome measures for this important patient group both for clinical services and for research and to allow comparing and pooling of data. CONCLUSIONS: A Core Outcome Set for post-COVID-19 condition should be developed in the shortest time frame possible, for improvement in data quality, harmonisation, and comparability between different geographical locations. We call for a global initiative, involving all relevant partners, including, but not limited to, healthcare professionals, researchers, methodologists, patients, and caregivers. We urge coordinated actions aiming to develop a Core Outcome Set (COS) for post-COVID-19 condition in both the adult and paediatric populations.
EP  - 13
UR  - https://doi.org/10.1186/s12916-021-02222-y
ID  - discovery10144042
Y1  - 2022/02/04/
TI  - Studying the post-COVID-19 condition: research challenges, strategies, and importance of Core Outcome Set development
AV  - public
ER  -