TY  - INPR
ID  - discovery10141839
N1  - This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions.
SN  - 1541-3764
JF  - Omega: Journal of Death and Dying
EP  - 28
AV  - public
N2  - Theories of good death focused on acceptance, control, and meaning-making inform adult palliative care in high-resource settings. As children?s palliative and hospice care (CPHC) develops in resource-limited settings, critical conceptualisations of a good death for children across these diverse settings are unknown. Assessed against high-resource setting tenets of good death from carer perspectives, results suggest: carer agency is limited; advanced discussion of death does not occur; distress results from multiple burdens; basic survival is prioritised; physical pain is not an emphasised experience; and carers publicly accept death quickly while private grief continues. Hegemonic conceptions of ?good death? for children do not occur in contexts where agency is constrained and discussing death is taboo, limiting open discussion, acceptance, and control of dying experiences. Alternate forms of discourse and good death could still occur. Critical, grounded conceptualisations of good death in individual resource-limited settings should occur in advance of CPHC development to effectively relieve expansive suffering in these contexts.
A1  - Daniels-Howell, C
PB  - SAGE PUBLICATIONS INC
Y1  - 2020/07/23/
UR  - https://doi.org/10.1177/0030222820944099
KW  - South Africa
KW  -  child health
KW  -  good death
KW  -  palliative care
KW  -  hospice
TI  - Caring for Children With Life-Limiting Illness in Bloemfontein, South Africa: Challenging the Assumptions of the 'Good Death'
ER  -