eprintid: 10136671 rev_number: 14 eprint_status: archive userid: 608 dir: disk0/10/13/66/71 datestamp: 2021-10-20 09:46:17 lastmod: 2022-09-01 14:43:59 status_changed: 2021-10-20 09:46:17 type: article metadata_visibility: show creators_name: Giani, T creators_name: Smith, EM creators_name: Al-Abadi, E creators_name: Armon, K creators_name: Bailey, K creators_name: Ciurtin, C creators_name: Davidson, J creators_name: Gardner-Medwin, J creators_name: Haslam, K creators_name: Hawley, DP creators_name: Leahy, A creators_name: Leone, V creators_name: McErlane, F creators_name: Mewar, D creators_name: Modgil, G creators_name: Moots, R creators_name: Pilkington, C creators_name: Pregnolato, F creators_name: Ramanan, AV creators_name: Rangaraj, S creators_name: Riley, P creators_name: Sridhar, A creators_name: Wilkinson, N creators_name: Cimaz, R creators_name: Beresford, MW creators_name: Hedrich, CM creators_name: UK JSLE Cohort Study, . title: Neuropsychiatric involvement in juvenile-onset systemic lupus erythematosus: Data from the UK Juvenile-onset systemic lupus erythematosus cohort study ispublished: inpress subjects: GOSH divisions: UCL divisions: B02 divisions: C10 divisions: D17 divisions: G90 keywords: Systemic lupus erythematosus, central nervous system, juvenile, neuropsychiatric, pediatric, peripheral nervous system note: This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) abstract: Introduction: Juvenile-onset systemic lupus erythematosus (JSLE) is a rare autoimmune/inflammatory disease with significant morbidity and mortality. Neuropsychiatric (NP) involvement is a severe complication, encompassing a heterogeneous range of neurological and psychiatric manifestations. // Methods: Demographic, clinical, and laboratory features of NP-SLE were assessed in participants of the UK JSLE Cohort Study, and compared to patients in the same cohort without NP manifestations. // Results: A total of 428 JSLE patients were included in this study, 25% of which exhibited NP features, half of them at first visit. Most common neurological symptoms among NP-JSLE patients included headaches (78.5%), mood disorders (48.6%), cognitive impairment (42%), anxiety (23.3%), seizures (19.6%), movement disorders (17.7%), and cerebrovascular disease (14.9%). Peripheral nervous system involvement was recorded in 7% of NP-SLE patients. NP-JSLE patients more frequently exhibited thrombocytopenia (<100 × 109/L) (p = 0.04), higher C-reactive protein levels (p = 0.01), higher global pBILAG score at first visit (p < 0.001), and higher SLICC damage index score at first (p = 0.02) and last (p < 0.001) visit when compared to JSLE patients without NP involvement. // Conclusions: A significant proportion of JSLE patients experience NP involvement (25%). Juvenile-onset NP-SLE most commonly affects the CNS and is associated with increased overall disease activity and damage. date: 2021-10-02 date_type: published official_url: https://doi.org/10.1177/09612033211045050 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1893705 doi: 10.1177/09612033211045050 lyricists_name: Ciurtin, Coziana lyricists_id: CCIUR23 actors_name: Kalinowski, Damian actors_id: DKALI47 actors_role: owner full_text_status: public publication: Lupus event_location: England citation: Giani, T; Smith, EM; Al-Abadi, E; Armon, K; Bailey, K; Ciurtin, C; Davidson, J; ... UK JSLE Cohort Study, .; + view all <#> Giani, T; Smith, EM; Al-Abadi, E; Armon, K; Bailey, K; Ciurtin, C; Davidson, J; Gardner-Medwin, J; Haslam, K; Hawley, DP; Leahy, A; Leone, V; McErlane, F; Mewar, D; Modgil, G; Moots, R; Pilkington, C; Pregnolato, F; Ramanan, AV; Rangaraj, S; Riley, P; Sridhar, A; Wilkinson, N; Cimaz, R; Beresford, MW; Hedrich, CM; UK JSLE Cohort Study, .; - view fewer <#> (2021) Neuropsychiatric involvement in juvenile-onset systemic lupus erythematosus: Data from the UK Juvenile-onset systemic lupus erythematosus cohort study. Lupus 10.1177/09612033211045050 <https://doi.org/10.1177/09612033211045050>. (In press). Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10136671/1/Ciurtin_Neuropsychiatric%20involvement%20in%20juvenile-onset%20systemic%20lupus%20erythematosus_AOP.pdf