eprintid: 10127717
rev_number: 30
eprint_status: archive
userid: 608
dir: disk0/10/12/77/17
datestamp: 2021-05-18 15:38:11
lastmod: 2021-10-07 15:06:49
status_changed: 2021-10-07 15:06:49
type: article
metadata_visibility: show
creators_name: Goff, LM
creators_name: Moore, AP
creators_name: Harding, S
creators_name: Rivas, C
title: Development of Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), a culturally-tailored diabetes self-management education and support programme for black-British adults: a participatory research approach
ispublished: pub
divisions: UCL
divisions: B16
divisions: B14
divisions: J81
note: © 2021 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
abstract: Aims: To develop an evidence-based, culturally tailored, diabetes self-management education and support programme for Black-British adults, called Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), using participatory methods to engage key stakeholders in the intervention design process. // 
Methods: Black-British adults living with type 2 diabetes, healthcare professionals and community leaders were engaged in an intervention development study. The intervention structure, format, content and delivery were developed through three phases of participatory research: Phase 1, formative research, involved focus groups and interviews; interactive co-development workshops were conducted in Phase 2; and Phase 3 focused on materials development. // Results: In Phase 1, focus groups and interviews identified the importance of nurturing collectivism, a reliance on informal sources of information/advice, barriers to attending appointments associated with competing priorities of work, travel and carer commitments, and a preference for directness and simple, clear advice/messages. A priority for healthcare professionals was the intervention embedding within current primary care structures and aligning with incentivised targets/metrics. Phase 2 (workshops) highlighted key requirements: avoidance of medical settings, appropriately trained and culturally knowledgeable educators, flexible appointments, preference for verbal and visual information and avoidance of technical/medical terminology. In Phase 3 (materials development), culturally sensitive videos, short films and information booklets were developed to convey educational messages, and food photography was used to provide culturally relevant dietary advice. // Conclusions: Participatory methods provide a means to understand the needs of specific communities. This approach enables the development of healthcare interventions that are sensitive to the needs of service users and providers.
date: 2021-05-04
official_url: https://doi.org/10.1111/dme.14594
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1864267
doi: 10.1111/dme.14594
lyricists_name: Rivas, Carol
lyricists_id: CARIV33
actors_name: Rivas, Carol
actors_id: CARIV33
actors_role: owner
full_text_status: public
publication: Diabetic Medicine
article_number: e14594
event_location: England
issn: 1464-5491
citation:        Goff, LM;    Moore, AP;    Harding, S;    Rivas, C;      (2021)    Development of Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), a culturally-tailored diabetes self-management education and support programme for black-British adults: a participatory research approach.                   Diabetic Medicine      , Article e14594.  10.1111/dme.14594 <https://doi.org/10.1111/dme.14594>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10127717/1/Rivas_dme.14594.pdf