eprintid: 10115130 rev_number: 21 eprint_status: archive userid: 608 dir: disk0/10/11/51/30 datestamp: 2020-11-18 12:05:48 lastmod: 2021-12-28 22:57:08 status_changed: 2020-11-18 12:05:48 type: article metadata_visibility: show creators_name: Gupta, S creators_name: Aitken, J creators_name: Bartels, U creators_name: Bhakta, N creators_name: Bucurenci, M creators_name: Brierley, JD creators_name: De Camargo, B creators_name: Chokunonga, E creators_name: Clymer, J creators_name: Coza, D creators_name: Fraser, C creators_name: Fuentes-Alabi, S creators_name: Gatta, G creators_name: Gross, T creators_name: Jakab, Z creators_name: Kohler, B creators_name: Kutluk, T creators_name: Moreno, F creators_name: Nakata, K creators_name: Nur, S creators_name: Parkin, DM creators_name: Penberthy, L creators_name: Pole, J creators_name: Poynter, JN creators_name: Pritchard-Jones, K creators_name: Ramirez, O creators_name: Renner, L creators_name: Steliarova-Foucher, E creators_name: Sullivan, M creators_name: Swaminathan, R creators_name: Van Eycken, L creators_name: Vora, T creators_name: Frazier, AL title: Development of paediatric non-stage prognosticator guidelines for population-based cancer registries and updates to the 2014 Toronto Paediatric Cancer Stage Guidelines ispublished: pub divisions: UCL divisions: B02 divisions: D13 divisions: G22 note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions. abstract: Population-based cancer registries (PBCRs) generate measures of cancer incidence and survival that are essential for cancer surveillance, research, and cancer control strategies. In 2014, the Toronto Paediatric Cancer Stage Guidelines were developed to standardise how PBCRs collect data on the stage at diagnosis for childhood cancer cases. These guidelines have been implemented in multiple jurisdictions worldwide to facilitate international comparative studies of incidence and outcome. Robust stratification by risk also requires data on key non-stage prognosticators (NSPs). Key experts and stakeholders used a modified Delphi approach to establish principles guiding paediatric cancer NSP data collection. With the use of these principles, recommendations were made on which NSPs should be collected for the major malignancies in children. The 2014 Toronto Stage Guidelines were also reviewed and updated where necessary. Wide adoption of the resultant Paediatric NSP Guidelines and updated Toronto Stage Guidelines will enhance the harmonisation and use of childhood cancer data provided by PBCRs. date: 2020-09 date_type: published publisher: ELSEVIER SCIENCE INC official_url: https://doi.org/10.1016/S1470-2045(20)30320-X oa_status: green full_text_type: other language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1812788 doi: 10.1016/S1470-2045(20)30320-X lyricists_name: Pritchard-Jones, Kathryn lyricists_id: KPPRI20 actors_name: Pritchard-Jones, Kathryn actors_id: KPPRI20 actors_role: owner full_text_status: public publication: The Lancet Oncology volume: 21 number: 9 pagerange: E444-E451 pages: 8 issn: 1474-5488 citation: Gupta, S; Aitken, J; Bartels, U; Bhakta, N; Bucurenci, M; Brierley, JD; De Camargo, B; ... Frazier, AL; + view all <#> Gupta, S; Aitken, J; Bartels, U; Bhakta, N; Bucurenci, M; Brierley, JD; De Camargo, B; Chokunonga, E; Clymer, J; Coza, D; Fraser, C; Fuentes-Alabi, S; Gatta, G; Gross, T; Jakab, Z; Kohler, B; Kutluk, T; Moreno, F; Nakata, K; Nur, S; Parkin, DM; Penberthy, L; Pole, J; Poynter, JN; Pritchard-Jones, K; Ramirez, O; Renner, L; Steliarova-Foucher, E; Sullivan, M; Swaminathan, R; Van Eycken, L; Vora, T; Frazier, AL; - view fewer <#> (2020) Development of paediatric non-stage prognosticator guidelines for population-based cancer registries and updates to the 2014 Toronto Paediatric Cancer Stage Guidelines. The Lancet Oncology , 21 (9) E444-E451. 10.1016/S1470-2045(20)30320-X <https://doi.org/10.1016/S1470-2045%2820%2930320-X>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10115130/3/Pritchard-Jones_Development%20of%20paediatric%20non-stage%20prognosticator%20guidelines%20for%20population-based%20cancer%20registries%20and%20updates%20to%20the%202014%20Toronto%20Paediatric%20Cancer%20Stage%20Guidelines_AAM.pdf