Schulz, A;    Jain, M;    Butt, T;    Ballinger, R;    Eliasson, L;    Macey, J;    Peasgood, T;                 ... West, A; + view all <#>        Schulz, A;  Jain, M;  Butt, T;  Ballinger, R;  Eliasson, L;  Macey, J;  Peasgood, T;  Olaye, A;  Terzakis-Snyder, I-A;  Dyck, I;  West, A;   - view fewer <#>    (2020)    The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany.                   Journal of Inborn Errors of Metabolism and Screening , 8       10.1590/2326-4594-jiems-2019-0013 <https://doi.org/10.1590/2326-4594-jiems-2019-0013>.       Green open access