?url_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.aufirst=A&rft.aulast=Schulz&rft.au=Schulz%2C+A&rft.volume=8&rft.date=18+May+2020&rft.issn=2326-4594&rft.atitle=The+Challenges+of+Living+with+and+Caring+for+a+Child+or+Children+Affected+by+Neuronal+Ceroid+Lipofuscinosis+Type+2+Disease%3A+In-Depth+Family+Surveys+in+the+United+Kingdom+and+Germany&rft.title=Journal+of+Inborn+Errors+of+Metabolism+and+Screening&rft.genre=article