eprintid: 10092419 rev_number: 27 eprint_status: archive userid: 608 dir: disk0/10/09/24/19 datestamp: 2020-02-28 11:06:14 lastmod: 2022-01-16 01:07:47 status_changed: 2020-02-28 11:06:14 type: article metadata_visibility: show creators_name: Li, V creators_name: Jaunmuktane, Z creators_name: Cwynarski, K creators_name: Carr, A title: Diagnostic delay in a case of T-cell neurolymphomatosis ispublished: pub divisions: UCL divisions: B02 divisions: C07 divisions: D07 divisions: F84 note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: A 69-year-old woman presented with severe subacute painful meningoradiculoneuritis. Neurophysiology showed a patchy, proximal axonal process with widespread denervation. Cerebrospinal fluid (CSF) was lymphocytic (normal T-cell predominant) with negative cytology. MRI revealed multiple sites of enhancement, but fluorodeoxyglucose positron emission tomography was negative. Bone marrow aspirate and trephine (BMAT) showed no evidence of a lymphoproliferative condition. Right brachial plexus biopsy demonstrated mixed T-cell/B-cell endoneurial inflammation not fulfilling criteria for vasculitis. She was stabilised with high-dose steroids and cyclophosphamide, followed by mycophenolate for inflammatory myeloradiculoneuritis. However, symptoms recurred when prednisolone was weaned. Although T-cell receptor gene analysis from the initial CSF demonstrated clonal rearrangements, it was only when the same clones were identified on two repeat BMATs and CSF that T-cell neurolymphomatosis, an exceedingly rare condition, was diagnosed. This case highlights the diagnostic challenge in peripheral neurolymphomatosis related to patchy disease, variable sensitivity and specificity of investigative tools, and the influence of therapies on traditional cytological definitions of lymphoma. The clinical picture, exhaustive exclusion of alternative causes and the persistence of an abnormal T-cell clone ultimately lead to a diagnostic consensus between specialist neurology and haematology clinicians. date: 2019-12 date_type: published official_url: https://doi.org/10.1136/bcr-2019-232538 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1737238 doi: 10.1136/bcr-2019-232538 pii: 12/12/e232538 lyricists_name: Jaunmuktane, Zane lyricists_id: ZJAUN70 actors_name: Allington-Smith, Dominic actors_id: DAALL44 actors_role: owner full_text_status: public publication: BMJ Case Reports volume: 12 number: 12 article_number: e232538 event_location: England citation: Li, V; Jaunmuktane, Z; Cwynarski, K; Carr, A; (2019) Diagnostic delay in a case of T-cell neurolymphomatosis. BMJ Case Reports , 12 (12) , Article e232538. 10.1136/bcr-2019-232538 <https://doi.org/10.1136/bcr-2019-232538>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10092419/13/Jaunmuktane_Diagnostic%20delay%20in%20a%20case%20of%20T-cell%20neurolymphomatosis_combined.pdf