eprintid: 10085875 rev_number: 25 eprint_status: archive userid: 608 dir: disk0/10/08/58/75 datestamp: 2019-11-18 17:54:31 lastmod: 2021-09-28 22:33:32 status_changed: 2019-11-18 17:54:31 type: article metadata_visibility: show creators_name: Kleinstäuber, M creators_name: Wolf, L creators_name: Jones, ASK creators_name: Dalbeth, N creators_name: Petrie, KJ title: Internalized and Anticipated Stigmatization in Patients With Gout ispublished: pub divisions: UCL divisions: B02 divisions: C08 divisions: D10 divisions: G11 note: © 2019 The Authors. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/). abstract: OBJECTIVE: To investigate the relationship between stigma perception and demographic, clinical, and psychosocial variables. METHODS: A sample of 50 patients with gout and prescribed urate‐lowering medication (84% were males, mean serum urate 0.34 mmol/l) completed questionnaires on internalized and anticipated stigma, demographics, clinical gout‐related variables, and psychosocial variables (illness perceptions, illness‐related disability, illness‐related body satisfaction, intentional nonadherence). Serum urate level was obtained from the most recent blood test. RESULTS: In this sample, 26% experienced internalized stigma, 26% expected to be stigmatized by friends or family members, and 14% by health care workers. Univariate regression analyses showed that younger age, ethnicity other than New Zealand European, increased severity of gout pain, cognitive and emotional illness perceptions, greater illness‐related disability, and increased intentional nonadherence to urate‐lowering medication were associated with increased internalized and anticipated stigma. Younger age, emotional illness response, and intentional nonadherence were the only variables explaining incremental variance of the experience of anticipated stigma in a multivariate regression model. CONCLUSION: Internalized and anticipated illness‐related stigma was reported by a subgroup of patients with gout. The experience of stigma is associated with younger age, a negative emotional illness response, and intentions to not adhere with a medical treatment. date: 2020-01 date_type: published publisher: Wiley official_url: https://doi.org/10.1002/acr2.11095 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1718584 doi: 10.1002/acr2.11095 lyricists_name: Jones, Annie Selina Kozlowski lyricists_id: AJONA85 actors_name: Flynn, Bernadette actors_id: BFFLY94 actors_role: owner full_text_status: public publication: ACR Open Rheumatology volume: 2 number: 1 pagerange: 11-17 issn: 2578-5745 citation: Kleinstäuber, M; Wolf, L; Jones, ASK; Dalbeth, N; Petrie, KJ; (2020) Internalized and Anticipated Stigmatization in Patients With Gout. ACR Open Rheumatology , 2 (1) pp. 11-17. 10.1002/acr2.11095 <https://doi.org/10.1002/acr2.11095>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10085875/8/Jones_Internalized%20and%20Anticipated%20Stigmatization%20in%20Patients%20With%20Gout_VoR.pdf